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脊髓损伤后与膀胱相关的生活质量:来自神经源性膀胱研究组脊髓损伤登记处的研究结果。

Bladder-Related Quality of Life After Spinal Cord Injury: Findings from the Neurogenic Bladder Research Group Spinal Cord Injury Registry.

机构信息

Division of Urology, Department of Surgery, University of Utah, 50 N Medical Drive, Salt Lake City, UT, 84103, USA.

Division of Urology, Department of Surgery, University of Utah, 50 N Medical Drive, Salt Lake City, UT, 84103, USA.

出版信息

Urol Clin North Am. 2024 May;51(2):163-176. doi: 10.1016/j.ucl.2024.02.004. Epub 2024 Mar 11.

Abstract

The Neurogenic Bladder Research Group (NBRG) was formed with the mission to optimize quality of life (QoL), surgical outcomes, and clinical care of patients with neurogenic lower urinary tract dysfunction. One of the original priorities of the organization was to support creation of the NBRG Spinal Cord Injury (SCI) Registry. The aim of this Registry was to establish a prospective database, in order to study bladder-related QoL after SCI. The study enrolled close to 1500 participants from across North America over an 18 month time-period (January 2016-July 2017).

摘要

神经原性膀胱研究小组(NBRG)成立的使命是优化生活质量(QoL)、手术结果和神经原性下尿路功能障碍患者的临床护理。该组织的最初优先事项之一是支持创建 NBRG 脊髓损伤(SCI)登记处。该登记处的目的是建立一个前瞻性数据库,以研究脊髓损伤后的膀胱相关生活质量。该研究在 18 个月的时间内(2016 年 1 月至 2017 年 7 月)从北美各地招募了近 1500 名参与者。

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