Departments of Public Health & Preventive Medicine and Urology, SUNY Upstate Medical University, Syracuse, NY, 13210, USA.
New York State Office for People With Developmental Disabilities (OPWDD), Albany, NY, 12229, USA.
Disabil Health J. 2024 Jul;17(3):101623. doi: 10.1016/j.dhjo.2024.101623. Epub 2024 Apr 9.
People with intellectual and developmental disabilities (IDD) in the US, especially those living in group homes, experienced comparatively higher Covid-19 case/case fatality rates than the general population during the first year of the pandemic. There is no information about the patterns of case/case fatality rates during this time.
This study compared Covid-19 case/case fatality rates among people with IDD living in residential group homes to the general population across the first year of the pandemic in New York State (NYS).
Covid-19 positive cases and deaths collected from New York Disability Advocates (NYDA), a coalition of organizations serving individuals with IDD, was compared to data for the NYS general population from the first pandemic year. Case rates/100,000 and case fatality rates were calculated for the study period. Joinpoint Trend Analysis Software was used to analyze patterns in weekly case/case fatality rates.
Case fatality rates for people with IDD were higher than for the overall state population throughout the pandemic's first year. Case rates were higher among people with IDD across most of this year. Although the patterns in rates were similar, there was a sharp increase in cases for those with IDD during Fall 2020 beginning eight weeks before the general NYS population and a significant decrease in fatalities in late December 2020 into January 2021.
Consistently higher case fatality rates and significant differences in case/case fatality rates for people with IDD living in group homes require further consideration. Planning for future emergencies will require an enhanced federal/state understanding of the needs of people with IDD and a responsive surveillance system.
美国的智力和发育障碍者（IDD），尤其是居住在群体家庭中的人，在大流行的第一年，其新冠病毒病例/病死率比一般人群更高。在此期间，没有关于病例/病死率模式的信息。
本研究比较了纽约州（NYS）群体家庭中 IDD 患者的新冠病毒病例/病死率与大流行第一年一般人群的病死率。
从代表智障人士的组织联盟——纽约残疾倡导者（NYDA）收集新冠病毒阳性病例和死亡数据，并与 NYS 同期的一般人群数据进行比较。计算了研究期间的病例率/每 10 万人和病例病死率。使用 Joinpoint 趋势分析软件分析每周病例/病死率的模式。
在大流行的第一年，智障人士的病死率高于全州总人口。在今年的大部分时间里，智障人士的病例率都更高。尽管这些比率的模式相似，但智障人士的病例数在 2020 年秋季急剧增加，比 NYS 一般人群提前八周，而 2020 年 12 月底至 2021 年 1 月的死亡人数则显著下降。
智障人士的病死率始终较高，以及群体家庭中 IDD 患者的病例/病死率存在显著差异，需要进一步考虑。为未来的紧急情况做规划需要联邦/州政府更深入地了解 IDD 患者的需求，并建立一个响应性的监测系统。
