Ramirez Lourdes G, Louisias Margee, Ogbogu Princess U, Stinson Alanna, Gupta Ruchi, Sansweet Samantha, Singh Tarandeep, Apter Andrea, Jones Bridgette L, Nyenhuis Sharmilee M
Division of Allergy and Immunology, Brigham and Women's Hospital and Harvard Medical School, Boston, Mass.
Division of Pediatric Allergy, Immunology, and Rheumatology, University Hospitals Rainbow Babies and Children's Hospital, Cleveland, Ohio; Department of Pediatrics, Case Western Reserve University School of Medicine, Cleveland, Ohio.
J Allergy Clin Immunol Pract. 2024 Oct;12(10):2617-2624. doi: 10.1016/j.jaip.2024.04.023. Epub 2024 Apr 20.
Patient-reported outcomes (PROs) are measures of patients' health that are conveyed directly by individual patients. These measures serve as instruments to evaluate the impact of interventions on any aspect of patients' health, from specific symptoms to broader quality of life indicators. However, their effectiveness relies on capturing relevant factors accurately. Whereas they are commonly used in clinical trials, PROs extend their influence across health care settings, informing clinicians, health care payers, regulators, and administrators to guide quality improvement and reimbursement decisions. Neglecting health equity considerations in PRO development and implementation widens health disparities, leading to biased interpretations, medical mismanagement, and poor health outcomes among marginalized groups. To foster equitable health care, efforts must focus on considering the values of underrepresented populations in PRO design, addressing barriers to completion, enhancing representation in research, providing cultural competency training for clinicians, and allocating research funding to support health equity research. By addressing these issues, advances can be made toward fostering inclusive, equitable health care for all individuals.
患者报告结局（PROs）是由患者个人直接传达的患者健康状况衡量指标。这些指标作为工具，用于评估干预措施对患者健康任何方面的影响，从特定症状到更广泛的生活质量指标。然而，它们的有效性依赖于准确捕捉相关因素。虽然PROs常用于临床试验，但它们的影响扩展到整个医疗保健领域，为临床医生、医疗保健支付方、监管机构和管理人员提供信息，以指导质量改进和报销决策。在PRO的开发和实施过程中忽视健康公平考量会扩大健康差距，导致有偏见的解读、医疗管理不善以及边缘化群体健康状况不佳。为促进公平的医疗保健，必须努力在PRO设计中考虑代表性不足人群的价值观，解决完成过程中的障碍，加强研究中的代表性，为临床医生提供文化能力培训，并分配研究资金以支持健康公平研究。通过解决这些问题，可以在为所有人促进包容性、公平的医疗保健方面取得进展。
