Student Research Committee, Mashhad University of Medical Science, Mashhad, Iran.
Department of Neurology, Ghaem Hospital, Mashhad University of Medical Sciences, Mashhad, Iran.
Reprod Health. 2024 May 1;21(1):59. doi: 10.1186/s12978-024-01799-w.
The maternal role is one of the most challenging yet rewarding roles that women experience in their lives. It begins when a woman becomes pregnant, and as the pregnancy progresses, she prepares to fulfill her role as a mother. A woman's health plays a crucial role in her ability to fulfill the maternal role. Multiple sclerosis (MS), as an autoimmune disease, presents unique challenges in achieving this role. Failing to fulfill the maternal role can have lasting consequences for both the mother and the baby. Given the increasing number of women with MS of reproductive age in Iran and the absence of specific programs for this group during pregnancy and postpartum, researchers have decided to develop a supportive program by exploring the meaning of the maternal role and identifying the needs of these women during this period.
METHODS/MATERIALS: This study will be conducted in 3 stages. The first stage involves a qualitative study to explore the meaning of the "maternal role" in women with MS through a descriptive and interpretive phenomenological approach based on Van Manen's method. Data will be collected through semi-structured interviews with pregnant women with MS and mothers with MS who have children under one-year-old, recruited from the Multiple Sclerosis Society of Mashhad, Iran. The second stage will involve designing a support program based on the findings of the phenomenological study, literature review, and exploratory interviews. A logical model will guide the development of the program, and validation will be conducted using the nominal group technique.
This study is the first of its kind in Iran to explore the meaning of the maternal role and develop a support program for women with MS. It is hoped that the results of this study will help address the challenges of motherhood faced by these women.
母亲的角色是女性在生活中经历的最具挑战性但也最有回报的角色之一。它始于女性怀孕之时，随着孕期的推进，她开始准备履行母亲的角色。女性的健康在她履行母亲角色的能力中起着至关重要的作用。多发性硬化症（MS）作为一种自身免疫性疾病，在实现这一角色方面带来了独特的挑战。无法履行母亲的角色可能会对母亲和婴儿都产生持久的影响。鉴于伊朗越来越多的生育年龄的 MS 女性，以及在怀孕和产后期间针对这一群体缺乏特定的项目，研究人员决定通过探索母亲角色的意义并确定这些女性在此期间的需求，来制定一个支持性的项目。
方法/材料：本研究将分三个阶段进行。第一阶段是通过基于 Van Manen 方法的描述性和解释性现象学方法进行的定性研究，旨在探索 MS 女性的“母亲角色”的意义。通过对来自伊朗马什哈德多发性硬化症协会的 MS 孕妇和有一岁以下孩子的 MS 母亲进行半结构化访谈来收集数据。第二阶段将根据现象学研究、文献回顾和探索性访谈的结果设计支持性方案。逻辑模型将指导方案的制定，并使用名义团体技术进行验证。
这是伊朗首次探索 MS 女性的母亲角色的意义并制定支持性方案。希望本研究的结果将有助于解决这些女性面临的母性挑战。
