Eliacin Johanne, Polsinelli Angelina, Cameron Kenzie A, Saykin Andrew J, Wang Sophia
National Center for PTSD, Boston VA Healthcare System, 150 South Huntington Street, Boston, MA 02130, USA.
VA HSR&D Center for Health Information and Communication, Richard L. Roudebush VA Medical Center, 1481 West 10th Street, Indianapolis, IN 46202, USA.
PEC Innov. 2024 Apr 19;4:100282. doi: 10.1016/j.pecinn.2024.100282. eCollection 2024 Dec.
Lack of awareness of Alzheimer's disease (AD) among Black Americans may undermine their ability to identify potential AD risk. We examined Black Americans' perceptions and knowledge of AD, and views of a healthy brain, which may contribute to the development of effective and culturally sensitive strategies to address racial disparities in AD.
We conducted a mixed-methods study, integrating a cross-sectional survey of 258 older (>55 years) Black participants and qualitative interviews with a sub-sample of = 29. Both data sets were integrated to inform the results.
Participants endorsed having little knowledge of AD. While most participants reported practicing a healthy lifestyle to promote a healthy brain, the range of activities listed were limited. Participants made several suggestions to increase AD awareness, which includes using AD educational materials containing information that would benefit the whole family, not only older adults. Outreach approaches that address both individual behaviors and structural factors were also encouraged.
Our findings identify ongoing needs to improve AD awareness among traditionally under-represented groups.
The study utilized novel approaches to examine participants' perspectives of AD that included a diverse sample of research naïve participants, and integrated exploration of participants' views of AD and brain health.
美国黑人对阿尔茨海默病(AD)缺乏认知,这可能会削弱他们识别潜在AD风险的能力。我们研究了美国黑人对AD的认知和了解,以及他们对健康大脑的看法,这可能有助于制定有效且具有文化敏感性的策略,以解决AD方面的种族差异问题。
我们开展了一项混合方法研究,纳入了对258名年龄大于55岁的黑人参与者的横断面调查,以及对29名参与者子样本的定性访谈。将这两个数据集整合起来以得出结果。
参与者认可自己对AD了解甚少。虽然大多数参与者表示践行健康的生活方式以促进大脑健康,但列出的活动范围有限。参与者提出了一些提高AD认知的建议,包括使用包含对整个家庭有益信息(而不仅仅是对老年人有益)的AD教育材料。还鼓励采用既涉及个体行为又涉及结构因素的外展方法。
我们的研究结果确定了在传统上代表性不足的群体中提高AD认知的持续需求。
该研究采用了新颖的方法来研究参与者对AD的看法,包括一个由未接触过研究的参与者组成的多样化样本,并综合探索了参与者对AD和大脑健康的看法。