Department of Medical Genetics, Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
BC Children's Hospital Research Institute, Vancouver, British Columbia, Canada.
J Adolesc. 2024 Aug;96(6):1249-1262. doi: 10.1002/jad.12335. Epub 2024 May 6.
Previous research has demonstrated that children lacking knowledge about genetic disorders may have harmful attitudes toward people with disabilities, but disability awareness can successfully modify these attitudes. We explored adolescents' implicit and explicit attitudes toward peers with genetic conditions to determine whether improved genetics/genomics literacy can mitigate the impact of ableism in this population.
English-speaking adolescents (10-18 years) from British Columbia were invited to complete a Disability Attitudes Implicit Association Test (DA-IAT) and participate in a semi-structured focus group centering on a fictionalized vignette about an adolescent with Down syndrome. We used pragmatism as an analytical paradigm. Descriptive and inferential statistics were used to analyze DA-IAT and sociodemographic data; phronetic iterative analysis with constant comparison as a coding strategy for transcripts; and interpretive description to develop a conceptual model.
Twenty-two adolescents completed the DA-IAT and participated in one of four focus groups. Participants had a statistically significant implicit preference for non-disabled people (D-score = 0.72, SD = 0.44; t = 7.18, p < .00001). They demonstrated greater diversity in their explicit attitudes during the focus groups. Although participants articulated a positive attitude toward improved genetics education, results demonstrate their belief that social and personal interactions with disabled peers would be essential to address negative perceptions.
This study lays important groundwork to understand, explain, and influence the negative attitudes of adolescents toward individuals with disabilities. Findings will be used to inform the design of interventions that address biased perceptions of people with genetic disorders, with the goal of reducing prejudices and improving social interactions.
先前的研究表明,对遗传疾病缺乏了解的儿童可能对残疾人士持有有害的态度,但残疾意识可以成功地改变这些态度。我们探讨了青少年对患有遗传疾病的同伴的内隐和外显态度,以确定提高遗传/基因组素养是否可以减轻这一人群中能力歧视的影响。
邀请不列颠哥伦比亚省的英语青少年(10-18 岁)完成残疾态度内隐联想测验(DA-IAT),并参加以一个关于唐氏综合征青少年的虚构情景为中心的半结构化焦点小组。我们采用实用主义作为分析范例。使用描述性和推断性统计分析来分析 DA-IAT 和社会人口统计学数据;使用语用迭代分析和恒比比较作为转录的编码策略;并使用解释性描述来开发一个概念模型。
22 名青少年完成了 DA-IAT 并参加了四个焦点小组中的一个。参与者在无意识中对非残疾人士表现出明显的偏好(D 分数=0.72,标准差=0.44;t=7.18,p<0.00001)。在焦点小组中,他们表现出了更具多样性的外显态度。尽管参与者表达了对改善遗传教育的积极态度,但结果表明他们认为与残疾同伴的社会和个人互动对于解决负面看法至关重要。
本研究为理解、解释和影响青少年对残疾人士的负面态度奠定了重要基础。研究结果将用于为干预措施的设计提供信息,这些干预措施旨在解决对遗传障碍患者的偏见看法,目标是减少偏见,改善社会互动。