Department of Pediatric Cardiovascular Surgery, Instituto de Coração de Fortaleza, Fortaleza, Ceará, Brazil.
Department of Pediatric Cardiovascular Surgery, Hospital de Messejana, Fortaleza, Fortaleza, Ceará, Brazil.
Braz J Cardiovasc Surg. 2024 May 21;39(4):e20240138. doi: 10.21470/1678-9741-2024-0138.
Congenital heart disease (CHD) affects eight to ten out of every 1,000 births, resulting in approximately 23,057 new cases in Brazil in 2022. About one in four children with CHD requires surgery or other procedures in the first year of life, and it is expected that approximately 81% of these children with CHD will survive until at least 35 years of age. Professionals choosing to specialize in CHD surgery face numerous challenges, not only related to mastering surgical techniques and the complexity of the diseases but also to the lack of recognition by medical societies as a separate subspecialty. Furthermore, families face difficulties when access to services capable of providing treatment for these children. To address these challenges, it is essential to have specialized hospitals, qualified professionals, updated technologies, sustainable industry, appropriate financing, quality assessment systems, and knowledge generation. The path to excellence involves specialization across all involved parties. As we reflect on the importance of Pediatric Cardiovascular Surgery and Congenital Heart Diseases establishing themselves as a subspecialty of Cardiovascular Surgery, it is essential to look beyond our borders to countries like the United States of America and United Kingdom, where this evolution is already a reality. This autonomy has led to significant advancements in research, education, and patient care outcomes, establishing a care model. By following this path in Brazil, we not only align our practice with the highest international standards but also demonstrate our maturity and the ability to meet the specific needs of patients with CHD and those with acquired childhood heart disease.
先天性心脏病(CHD)影响每 1000 个新生儿中的 8 到 10 个,2022 年巴西约有 23057 例新病例。大约四分之一患有 CHD 的儿童在生命的第一年需要手术或其他治疗程序,预计这些患有 CHD 的儿童中约有 81%将至少存活到 35 岁。选择专门从事 CHD 手术的专业人员面临着许多挑战,不仅与掌握手术技术和疾病的复杂性有关,还与医学协会对其作为一个单独的亚专业的认可不足有关。此外,家庭在获得能够为这些儿童提供治疗的服务时也会面临困难。为了解决这些挑战,必须有专门的医院、合格的专业人员、更新的技术、可持续的产业、适当的融资、质量评估系统和知识生成。卓越之路涉及所有相关方的专业化。当我们反思小儿心血管外科学和先天性心脏病作为心血管外科学的一个亚专业的重要性时,我们必须超越国界,关注像美国和英国这样的国家,在这些国家,这种演变已经成为现实。这种自主权带来了研究、教育和患者护理结果的重大进展,建立了一种护理模式。通过在巴西走这条路,我们不仅使我们的实践与最高的国际标准保持一致,而且还展示了我们的成熟度和满足 CHD 患者以及患有获得性儿童心脏病患者的特定需求的能力。