姑息治疗中晚期癌症患者家庭照顾者的获益发现:一项定性研究
Benefit finding among family caregivers of patients with advanced cancer in a palliative treatment: a qualitative study.
作者信息
Song Yuanyi, Wang Min, Zhu Meina, Wang Na, He Ting, Wu Xu, Shi Zhihui, Chen Mengye, Ji Tian, Shen Ying
机构信息
Department of Breast and Urological Oncology, Department of Radiation and Medical Oncology, Zhongnan Hospital of Wuhan University, Wuhan University, Wuhan, Hubei, China.
Department of Thyroid and Breast Surgery, Zhongnan Hospital of Wuhan University, Wuhan University, Wuhan, Hubei, China.
出版信息
BMC Nurs. 2024 Jun 11;23(1):397. doi: 10.1186/s12912-024-02055-z.
BACKGROUND
Benefit finding is the search for positive meaning from traumatic events, such as cancer. It can help caregivers have a positive experience in the caregiving process, relieve negative emotions, and reduce caregiving stress. The aim of this study was to explore benefit finding among caregivers of patients with advanced cancer in their palliative caregiving journey.
METHODS
An exploratory qualitative design of phenomenology was used. Semistructured interviews were conducted with 19 caregivers of palliative care patients with advanced cancer. The Colaizzi 7-step analysis was used to analyse, summarize, and extract themes from the interview data.
RESULTS
The study identified five themes of caregiver benefit finding in the caregiving process: personal growth, strengthened relationships with patients, adjustment and adaptation, perceived social support, and perceived meaning in life. Most caregivers reported a closer, more dependent relationship with the patient, and only one caregiver did not report any positive changes.
CONCLUSIONS
Caregivers of palliative care patients with advanced cancer can have positive experiences in their care. Healthcare professionals should focus on supporting caregivers and helping them find positive experiences to cope with the challenges of caregiving and improve their quality of life.
背景
益处发现是指从诸如癌症等创伤性事件中寻找积极意义。它可以帮助照护者在照护过程中获得积极体验,缓解负面情绪,并减轻照护压力。本研究的目的是探讨晚期癌症患者的照护者在其姑息照护历程中的益处发现情况。
方法
采用探索性现象学质性设计。对19名晚期癌症姑息照护患者的照护者进行了半结构式访谈。采用Colaizzi七步分析法对访谈数据进行分析、总结和提炼主题。
结果
该研究确定了照护者在照护过程中益处发现的五个主题:个人成长、与患者关系的强化、调整与适应、感知到的社会支持以及感知到的生活意义。大多数照护者报告与患者的关系更亲密、更依赖,只有一名照护者未报告任何积极变化。
结论
晚期癌症姑息照护患者的照护者在照护过程中可以有积极体验。医护人员应专注于支持照护者,并帮助他们找到积极体验,以应对照护挑战并改善其生活质量。