Faculty of Wellbeing, Education and Language Studies, The Open University, Walton Hall, Milton Keynes, MK7 6AA, UK.
BMC Palliat Care. 2024 Jun 14;23(1):151. doi: 10.1186/s12904-024-01466-8.
The Ambitions for Palliative and End of Life Care is a national framework for local action in England co-produced by over 30 partners; little research has been conducted on how the Framework is received and used. This study sought to examine and support how people understand, interpret, and implement the Framework.
A multi-stage qualitative methodology involving four stages of data collection: (1) case study interviews, (2) focus groups, (3) interactive workshops, and (4) Evidence Cafés. From initial interviews, ongoing thematic data analysis informed the design and focus of subsequent stages as part of a process of knowledge transfer.
A practical resource to support service provision and development was produced; a grab-and-go guide called "Small Steps, Big Visions". It focuses on the eight foundations in the Ambitions Framework, with additional guidance on collaboration and partnership working, and sharing learning. Each foundation is presented with a 'what' (definition), 'ask' (prompt questions), and 'examples in action' (drawn from case studies).
Research can contribute to policy implementation to advance palliative and end of life care. The engagement and input of those responsible for implementation is key.
《缓和医疗与临终关怀抱负》是英格兰地方行动的国家框架,由 30 多个合作伙伴共同制定;对于该框架的接受和使用情况,研究甚少。本研究旨在探讨和支持人们如何理解、解释和实施该框架。
采用多阶段定性方法,包括四个阶段的数据收集:(1)案例研究访谈,(2)焦点小组,(3)互动研讨会,和(4)证据咖啡馆。从最初的访谈开始,持续的主题数据分析为后续阶段的设计和重点提供了信息,这是知识转移过程的一部分。
制作了一个实用的资源,以支持服务的提供和发展;一个名为“Small Steps, Big Visions”的即拿即走指南。它侧重于抱负框架中的八个基础,以及关于合作和伙伴关系工作以及分享学习的额外指导。每个基础都有一个“是什么”(定义)、“问什么”(提示问题)和“实际行动中的例子”(取自案例研究)。
研究可以为政策实施做出贡献,以推进缓和医疗和临终关怀。负责实施的人的参与和投入是关键。