Porta Xènia, Nieto Rubén, Serrat Mayte, Bourdin Kreitz Pierre
eHealthLab, Faculty of Psychology and Education, Universitat Oberta de Catalunya, Barcelona, Spain.
Unitat d'Expertesa en Síndromes de Sensibilització Central, Servei de Reumatologia, Hospital Universitari Vall d'Hebron, Barcelona, Spain.
JMIR Form Res. 2024 Jun 18;8:e55751. doi: 10.2196/55751.
BACKGROUND: Chronic pain is prevalent in our society, with conditions such as fibromyalgia being notably widespread. The gold standard for aiding individuals dealing with chronic pain involves interdisciplinary approaches rooted in a biopsychosocial perspective. Regrettably, access to such care is difficult for most of the people in need. Information and communication technologies (ICTs) have been used as a way of overcoming access barriers (among other advantages). OBJECTIVE: This study addressed the little explored area of how individuals with fibromyalgia use and perceive different types of ICTs for pain management. METHODS: A cross-sectional study was conducted using an online survey. This survey was created to assess the use of different ICT tools for pain management, satisfaction with the tools used, and perceived advantages and disadvantages. In addition, data collection encompassed sociodemographic variables and pain-related variables, pain intensity, the impact of pain on daily life activities, and fear of movement/injury beliefs. In total, 265 individuals diagnosed with fibromyalgia completed the survey. RESULTS: Only 2 (0.75%) participants reported not having used any ICT tool for pain management. Among those who used ICT tools, an average of 10.94 (SD 4.48) of 14 different tools were used, with the most used options being instant messaging apps, websites dedicated to managing fibromyalgia, phone calls with health professionals, and online multimedia resources. Satisfaction rates were relatively modest (mean 2.09, SD 0.38) on a scale from 0 to 5, with instant messaging apps, phone calls with health professionals, fibromyalgia management websites, and online multimedia resources being the ones with higher satisfaction. Participants appreciated the ability to receive treatment from home, access to specialized treatment, and using ICTs as a supplement to in-person interventions. However, they also highlighted drawbacks, such as a lack of close contact with health professionals, difficulty expressing emotions, and a lack of knowledge or resources to use ICTs. The use of ICTs was influenced by age and educational background. Additionally, there was a negative correlation between satisfaction with ICT tools and fear of movement/injury. CONCLUSIONS: People with fibromyalgia are prone to using ICTs for pain management, especially those tools that allow them to be in contact with health professionals and have access to online resources. However, there is still a need to improve ICT tools since satisfaction ratings are modest. Moreover, strategies aimed at older people, those with lower levels of education, and those with higher levels of fear of movement/injury can be useful to potentiate the use of ICTs among them.
背景:慢性疼痛在我们的社会中很普遍,纤维肌痛等病症尤为常见。帮助慢性疼痛患者的金标准是基于生物心理社会视角的多学科方法。遗憾的是,大多数有需要的人难以获得这种护理。信息和通信技术(ICTs)已被用作克服获取障碍的一种方式(还有其他优点)。 目的:本研究探讨了纤维肌痛患者如何使用和看待不同类型的ICTs进行疼痛管理这一鲜有研究的领域。 方法:采用在线调查进行横断面研究。该调查旨在评估不同ICT工具用于疼痛管理的情况、对所使用工具的满意度以及感知到的优缺点。此外,数据收集涵盖社会人口统计学变量和与疼痛相关变量、疼痛强度、疼痛对日常生活活动的影响以及对运动/受伤的恐惧信念。共有265名被诊断为纤维肌痛的个体完成了调查。 结果:只有2名(0.75%)参与者表示未使用任何ICT工具进行疼痛管理。在使用ICT工具的人中,平均使用了14种不同工具中的10.94种(标准差4.48),使用最多的选项是即时通讯应用程序、专门用于管理纤维肌痛的网站、与健康专业人员的电话以及在线多媒体资源。在0至5的量表上,满意度相对适中(平均2.09,标准差0.38),即时通讯应用程序、与健康专业人员的电话、纤维肌痛管理网站和在线多媒体资源的满意度较高。参与者赞赏能够在家接受治疗、获得专业治疗以及将ICTs用作面对面干预的补充。然而,他们也强调了缺点,如缺乏与健康专业人员的密切接触、难以表达情绪以及缺乏使用ICTs的知识或资源。ICTs的使用受年龄和教育背景的影响。此外,对ICT工具的满意度与对运动/受伤的恐惧之间存在负相关。 结论:纤维肌痛患者倾向于使用ICTs进行疼痛管理,尤其是那些能让他们与健康专业人员联系并获取在线资源的工具。然而,由于满意度评级适中,仍有必要改进ICT工具。此外,针对老年人、教育水平较低者以及对运动/受伤恐惧程度较高者的策略可能有助于促进他们对ICTs的使用。
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