School of Medicine, University of Leeds, Leeds, UK.
Department of Nursing, University of the Highlands and Islands, Inverness, UK.
Support Care Cancer. 2024 Jun 26;32(7):463. doi: 10.1007/s00520-024-08657-2.
To explore whether profiles derived from self-reported quality of life were associated with receipt of, and interest in, advice from a healthcare professional in people with a stoma.
Secondary analysis of cross-sectional national survey data from England of 4487 people with a stoma from colorectal cancer. The survey assessed quality of life using various scales, receipt and interest in various forms of advice, and physical activity. A three-step latent profile analysis was conducted to determine the optimum number of profiles. Multinomial regression explored factors associated with profile membership. A series of logistic regression models examined whether profile membership was associated with interest in advice.
Five profiles were identified; 'consistently good quality of life', 'functional issues', 'functional and financial issues', 'low quality of life' and 'supported but struggling'. Individuals in the 'functional and financial issues' and 'low quality of life' profiles were more likely to have received financial advice compared to the 'consistently good quality of life' profile. When compared to the 'consistently good quality of life' profile, all other profiles were more likely to report wanting advice across a range of areas, with the strongest associations in the 'low quality of life' profile.
Findings indicate that people with a stoma are not a homogenous group in terms of quality of life. Participants in profiles with quality of life concerns report wanting more advice across various categories but findings suggest there is scope to explore how this can be tailored or adapted to specific groups.
探讨基于自我报告的生活质量评估结果的特征是否与接受和对医疗保健专业人员提供的建议的兴趣有关。
对来自英格兰的 4487 名结直肠癌造口患者的全国横断面调查数据进行二次分析。该调查使用多种量表评估生活质量,评估了接受和对各种形式的建议以及体育活动的兴趣。进行了三步潜在剖面分析以确定最佳的剖面数量。多分类回归分析探讨了与剖面成员资格相关的因素。一系列逻辑回归模型检验了剖面成员资格是否与对建议的兴趣有关。
确定了五个特征剖面,分别是“生活质量始终良好”、“功能问题”、“功能和财务问题”、“生活质量低”和“得到支持但挣扎”。与“生活质量始终良好”特征剖面相比,“功能和财务问题”和“生活质量低”特征剖面的个体更有可能获得财务建议。与“生活质量始终良好”特征剖面相比,所有其他特征剖面都更有可能报告在各种领域都需要建议,而“生活质量低”特征剖面的相关性最强。
研究结果表明,在生活质量方面,造口患者并不是一个同质群体。生活质量存在问题的参与者报告在各种类别中都需要更多的建议,但研究结果表明,有空间探索如何针对特定群体进行调整或定制这些建议。