Zhejiang Chinese Medical University, School of Nursing, Hangzhou, China.
The First Affiliated Hospital of Zhejiang Chinese Medical University (Zhejiang Provincial Hospital of Chinese Medicine), Hangzhou, China.
Haemophilia. 2024 Jul;30(4):1050-1058. doi: 10.1111/hae.15073. Epub 2024 Jun 24.
Total joint replacement is the optimal treatment option for patients with severe haemophilic arthritis. Current research emphasizes patient-reported outcomes as a vital measure for evaluating surgical outcomes and patient satisfaction. Nevertheless, very limited information about the subjective experience of perioperative haemophiliacs in the literature, highlighting the need for exploration in this area.
To investigate the psychological experiences and health demands of haemophilic arthropathy patients during the perioperative period of total joint replacement.
Qualitative descriptive research with semistructured individual interviews.
From June to September 2023, nine patients with severe haemophilic arthropathy who underwent total joint replacement at a Haemophilia Diagnosis and Treatment Centre in China were interviewed for average 37 min per person. Data were analysed using the traditional content analysis method and reported following the consolidated criteria for reporting qualitative research. The study is reported according to the COREQ checklist.
Interviews described two main themes: (1) emotional decline which involves preoperative overoptimism, early postoperative anxiety and disease uncertainty during the early independent rehabilitation. (2) wellness aspiration which includes rehabilitation support and spiritual healing.
This study reveals the patients' significant psychological changes and their well-being aspiration, particularly out-of-hospital rehabilitation needs. Strengthening communication between multidisciplinary teams and patients, enhancing the involvement of nurses, broadening the scope of functions at primary Haemophilia Treatment Centres, and developing telerehabilitation, these concerted efforts may improve the overall treatment experience for patients.
全关节置换术是治疗严重血友病性关节炎患者的最佳选择。目前的研究强调患者报告的结果是评估手术结果和患者满意度的重要指标。然而，文献中关于围手术期血友病患者主观体验的信息非常有限，这突出了在这一领域进行探索的必要性。
调查全关节置换术围手术期血友病性关节炎患者的心理体验和健康需求。
采用半结构式个体访谈的定性描述性研究。
2023 年 6 月至 9 月，对在中国一家血友病诊断和治疗中心接受全关节置换术的 9 名严重血友病性关节炎患者进行了访谈，每位患者的平均访谈时间为 37 分钟。采用传统的内容分析法对数据进行分析，并按照定性研究报告的统一标准进行报告。本研究按照 COREQ 清单进行报告。
访谈描述了两个主要主题：（1）情绪下降，包括术前过度乐观、术后早期焦虑和早期独立康复期间的疾病不确定性。（2）健康期望，包括康复支持和精神疗愈。
本研究揭示了患者显著的心理变化及其对健康的期望，特别是对院外康复需求的关注。加强多学科团队与患者之间的沟通，增强护士的参与度，拓宽基层血友病治疗中心的职能范围，发展远程康复，这些协同努力可能会改善患者的整体治疗体验。
