Servicio de Endocrinología Pediátrica, Hospital Sant Joan de Déu, Barcelona, Spain.
Servicio de Endocrinología y Nutrición, Hospital Clinic i Universitari, Barcelona, Spain; Centro de Investigación Biomédica en Red de Diabetes y Enfermedades Metabólicas Asociadas (CIBERDEM), Madrid, Spain; Institut d'investigacions biomèdiques August Pi i Sunyer (IDIBAPS), Barcelona, Spain.
Endocrinol Diabetes Nutr (Engl Ed). 2024 Jun-Jul;71(6):253-262. doi: 10.1016/j.endien.2024.04.003. Epub 2024 Jun 27.
To stablish the relationship between socioeconomic status of a cohort of children and adolescents with type 1 diabetes (T1D) with glycemic control, therapeutic adherence and diabetes quality of life (DQoL).
A cross-sectional, observational study with consecutive inclusion was carried out. Participants aged 8-18 years with T1D duration >1 year. Data on family structure, family income, parents' educational level and parental role on primary diabetes care supervision were registered. Adherence (DMQ-Sp) and DQoL (PedsQl) were analyzed. Linear and logistic regression models adjusted for demographics, family structure and parental role on primary diabetes care responsibility were applied.
A total of 323 patients (T1D duration 5,3 ± 3,3 years; HbA1c 7,7 ± 1,0%; age 13,3 ± 2,8 years; 49,8% females) were included. Patients living in a nuclear family and those whose main diabetes care supervision was shared by both parents showed lower HbA1c [adjusted for demographics and family structure (7,06; CI 95% 6,52-7,59); adjusted for demographics and role on primary diabetes care supervision (7,43; CI 95% 6,57-8,28)]. DMQ-Sp score (adjusted for demographics and role on main supervision) was higher in patients whose parents shared the diabetes care supervision (84,56; CI 95% 73,93-95,19). Parents sharing diabetes care supervision showed a significantly higher PedsQl score (both 74,63 ± 12,70 vs mother 68,53 ± 14,59; p = 0,001).
Children and adolescents with T1D had lower HbA1c, better therapeutic adherence and better DQoL when lived in a nuclear family, with higher socioeconomic status and the responsibility for supervising diabetes care was shared by both parents.
建立 1 型糖尿病(T1D)患儿和青少年社会经济地位与血糖控制、治疗依从性和糖尿病生活质量(DQoL)之间的关系。
进行了一项横断面、观察性研究,连续纳入参与者。年龄在 8-18 岁之间,T1D 病程>1 年。记录了家庭结构、家庭收入、父母的教育水平以及父母在初级糖尿病护理监督中的作用等数据。分析了依从性(DMQ-Sp)和 DQoL(PedsQl)。应用了调整人口统计学、家庭结构和父母在初级糖尿病护理责任中的作用的线性和逻辑回归模型。
共纳入 323 名患者(T1D 病程 5.3±3.3 年;HbA1c 7.7±1.0%;年龄 13.3±2.8 岁;49.8%为女性)。生活在核心家庭的患者和主要由父母共同监督糖尿病的患者,其 HbA1c 水平较低[调整人口统计学和家庭结构(7.06;95%CI 6.52-7.59);调整人口统计学和主要糖尿病护理监督角色(7.43;95%CI 6.57-8.28)]。DMQ-Sp 评分(调整人口统计学和主要监督角色)在父母共同监督糖尿病的患者中较高(84.56;95%CI 73.93-95.19)。共同监督糖尿病的父母表现出显著更高的 PedsQl 评分(均为 74.63±12.70,与母亲 68.53±14.59 相比,p=0.001)。
生活在核心家庭、社会经济地位较高、父母共同承担糖尿病护理责任的 1 型糖尿病患儿和青少年,其 HbA1c 水平较低,治疗依从性较好,DQoL 较高。