Takenouchi Naoko, Matsuoka Mari
University Hospital, Kyoto Prefectural University of Medicine, Kyoto, Japan.
School of Medicine, Faculty of Health Sciences, Kyoto University, Kyoto, Japan.
J Adolesc Young Adult Oncol. 2024 Dec;13(6):826-834. doi: 10.1089/jayao.2024.0017. Epub 2024 Jul 15.
A cancer diagnosis can greatly affect adolescents and young adults (AYAs), especially those in their late teens and early twenties, who might have their special needs. This study aimed to understand the experiences of the AYAs who were diagnosed between 15 and 24 years of age in Japan, thinking about the care guide supporting them, from the time of their cancer diagnosis through the rest of their lives. Data were collected using semi-structured interviews, which were audio recorded and transcribed verbatim. Qualitative analysis of the transcripts was used to categorize these into themes for comprehensive interpretation. Twenty AYAs participated; they were diagnosed between the ages 15 and 23 and were 19-29 years old at the time of the interview. In total, 14 core categories were identified, consisting of three themes (1) There is a feeling of distance between the cancer and me, (2) I face "my cancer" in my way, and (3) I feel that I would be okay with "my cancer." AYAs had their way of dealing with cancer while experiencing a distant feeling between themselves and the presence of the disease during their cancer journey. Although the process was not simple, they tried to live their lives in their own way, believing that they would be okay. Nurses must respect and understand that AYAs have a process of facing their own cancer with time and watch over AYAs' experiences to appropriately support them to successfully proceed further.
癌症诊断会对青少年及年轻成人(AYAs)产生重大影响,尤其是那些年龄在十八九岁和二十出头的人,他们可能有特殊需求。本研究旨在了解在日本15至24岁被诊断患癌的AYAs的经历,思考从癌症诊断之时直至其余生对他们的护理指导。数据通过半结构化访谈收集,访谈进行了录音并逐字转录。对转录文本进行定性分析,将其归类为主题以进行全面解读。20名AYAs参与了研究;他们在15至23岁之间被诊断患癌,访谈时年龄为19至29岁。总共确定了14个核心类别,由三个主题组成:(1)癌症与我之间有一种距离感;(2)我以自己的方式面对“我的癌症”;(3)我觉得我能应对“我的癌症”。AYAs在癌症历程中处理癌症时,自身与疾病的存在之间有一种距离感。尽管这个过程并不简单,但他们试图以自己的方式生活,相信自己会没事。护士必须尊重并理解AYAs有一个随着时间面对自身癌症的过程,并留意AYAs的经历,以便适当地支持他们顺利前行。