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评估慢性肾脏病患儿母亲的照顾者负担、抑郁和生活质量水平。

Assessment of Caregiver Burden, Depression and Quality of Life Levels Among Mothers of Children with Chronic Kidney Disease.

出版信息

Psychiatry. 2024 Fall;87(3):227-240. doi: 10.1080/00332747.2024.2372182. Epub 2024 Jul 24.

DOI:10.1080/00332747.2024.2372182
PMID:39046145
Abstract

: The causes of mental health problems among mothers of children with chronic kidney diseases (CKD) associated with childcare are still not fully understood. This study, thus, has aim to assess the intensity of caregiver burden, depression and quality of life levels in mothers of children with CKD compared to a control group. It also aims to identify determinants associated with mental health outcomes. Mothers of children diagnosed with CKD who were followed up in Pediatric Nephrology outpatient clinics were included as the case group. Mothers with similar demographic characteristics were taken as the control group. During the study, 72 children with CKD, 78 control children and their mothers were enrolled. The study data was obtained using the Sociodemographic Data Form (SDF) developed by the researchers, the Zarit Burden Interview (ZBI), the Beck Depression Inventory (BDI), and The World Health Organization Quality of Life (WHOQOL-Bref). The groups did differ significantly in terms of maternal psychopathology ( = .024). The most common maternal psychopathology among mothers was Major Depressive Disorder. Mothers of children with CKD had significantly higher level of caregiver burden and depression levels. Quality of life levels among mothers of children with CKD were significantly decreased compared to controls. Caregiver burden was found to predict quality of life in mothers of children with CKD (β = -0.539;  < .050). Caregiving burden, depression, and poor quality of life are common among mothers of children with CKD. Addressing caregiver burden may be beneficial for quality life of mothers.

摘要

: 儿童慢性肾脏病 (CKD) 母亲在照顾子女方面心理健康问题的原因尚不完全清楚。本研究旨在评估 CKD 患儿母亲与对照组相比,其照顾者负担、抑郁和生活质量的强度,并确定与心理健康结果相关的决定因素。研究纳入了在儿科肾病门诊接受随访的 CKD 患儿的母亲作为病例组。选择具有相似人口统计学特征的母亲作为对照组。在研究期间,共纳入了 72 名 CKD 患儿、78 名对照患儿及其母亲。研究数据通过研究者制定的社会人口统计学数据表格 (SDF)、Zarit 负担访谈 (ZBI)、贝克抑郁量表 (BDI) 和世界卫生组织生活质量量表 (WHOQOL-Bref) 获得。两组在母亲精神病理学方面存在显著差异( = .024)。母亲最常见的精神病理学是重度抑郁症。CKD 患儿的母亲照顾者负担和抑郁水平显著较高,生活质量水平显著降低。与对照组相比,CKD 患儿的母亲的生活质量水平显著降低。照顾者负担与 CKD 患儿母亲的生活质量呈负相关(β = -0.539; < .050)。照顾者负担、抑郁和生活质量差在 CKD 患儿的母亲中很常见。解决照顾者负担可能有益于改善母亲的生活质量。

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