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本文引用的文献

1
2023 Alzheimer's disease facts and figures.2023 年阿尔茨海默病事实和数据。
Alzheimers Dement. 2023 Apr;19(4):1598-1695. doi: 10.1002/alz.13016. Epub 2023 Mar 14.
2
What moral work can Nussbaum's account of human dignity do in the context of dementia care?努斯鲍姆的尊严论在痴呆症护理的背景下能做哪些道德方面的工作?
J Med Ethics. 2022 Dec;48(12):961-967. doi: 10.1136/jme-2021-108095. Epub 2022 Aug 3.
3
Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019.2019 年全球痴呆症患病率估计及 2050 年预测患病率:2019 年全球疾病负担研究分析。
Lancet Public Health. 2022 Feb;7(2):e105-e125. doi: 10.1016/S2468-2667(21)00249-8. Epub 2022 Jan 6.
4
Population Research: Convenience Sampling Strategies.人口研究:便利抽样策略。
Prehosp Disaster Med. 2021 Aug;36(4):373-374. doi: 10.1017/S1049023X21000649.
5
The meaning of dignity for older adults: A meta-synthesis.老年人尊严的意义:元分析。
Nurs Ethics. 2021 Sep;28(6):878-894. doi: 10.1177/0969733020928134. Epub 2020 Jul 2.
6
Dignifying and undignifying aspects of care for people with dementia: a narrative review.痴呆症患者护理的有尊严和无尊严方面:叙事评论。
Scand J Caring Sci. 2020 Dec;34(4):818-838. doi: 10.1111/scs.12791. Epub 2019 Nov 21.
7
Aging, lifestyle and dementia.衰老、生活方式与痴呆。
Neurobiol Dis. 2019 Oct;130:104481. doi: 10.1016/j.nbd.2019.104481. Epub 2019 May 25.
8
Dignity work of older women caring for a husband with dementia at home.老年女性在家照顾患有痴呆症丈夫的尊严工作。
Health Care Women Int. 2019 Oct;40(10):1047-1069. doi: 10.1080/07399332.2019.1578780. Epub 2019 Mar 26.
9
Concept synthesis of dignity in care for elderly facility residents.老年护理机构居民尊严关怀的概念综合
Nurs Ethics. 2019 Nov-Dec;26(7-8):2016-2034. doi: 10.1177/0969733018824763. Epub 2019 Feb 24.
10
Dignity from the nurses' and older patients' perspective: A qualitative literature review.护士和老年患者视角下的尊严:一项定性文献回顾。
Nurs Ethics. 2019 Aug;26(5):1292-1309. doi: 10.1177/0969733017747960. Epub 2018 Feb 22.

医疗保健专业人员对痴呆症患者尊严的看法:一项定性分析。

Healthcare Professionals' Perspectives on Dignity in Dementia: A Qualitative Analysis.

作者信息

Schou-Juul Frederik, Kjeldsen Rebecca Amalie Struwe, Ferm Lucca-Mathilde Thorup, Lauridsen Sigurd

机构信息

National Institute of Public health, University of Southern Denmark, Copenhagen, Denmark.

出版信息

Glob Qual Nurs Res. 2024 Sep 3;11:23333936241278074. doi: 10.1177/23333936241278074. eCollection 2024 Jan-Dec.

DOI:10.1177/23333936241278074
PMID:39233768
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11372769/
Abstract

In dementia care, the concept of dignity has garnered substantial attention from both researchers and policymakers. However, the concept often remains vague and open to interpretation, potentially leading to misunderstandings and suboptimal care for people with dementia. As healthcare professionals occupy a critical role in upholding dignity, exploring their viewpoints on this complex concept is paramount. In this study, we explore Danish healthcare professionals' views on the dignity of people with dementia and discuss these perspectives against existing theoretical accounts. We employed thematic analysis of data collected during facilitated discussions with a total of 99 healthcare professionals, including nurses and healthcare workers, during which we posed the question, "What is dignity to you?" and documented their perspectives. Through a systematic process of data coding and interpretation, we identified recurring patterns in their responses. This approach allowed us to uncover the depth and complexity of their viewpoints, providing valuable insights into the multifaceted nature of dignity as perceived by healthcare professionals. Our findings revealed that healthcare professionals possessed a nuanced understanding of dignity, recognizing both a subjective element and a universal aspect applicable to all individuals, aligning with theoretical interpretations. However, conceptual ambiguity remained a challenge.

摘要

在痴呆症护理领域,尊严的概念已引起研究人员和政策制定者的广泛关注。然而,这一概念往往仍很模糊且易于解读,这可能导致对痴呆症患者的误解和护理不当。由于医疗保健专业人员在维护尊严方面起着关键作用,探讨他们对这一复杂概念的看法至关重要。在本研究中,我们探讨丹麦医疗保健专业人员对痴呆症患者尊严的看法,并对照现有理论阐述讨论这些观点。我们对与总共99名医疗保健专业人员(包括护士和医护人员)进行的促进性讨论中收集的数据进行了主题分析,讨论期间我们提出了“尊严对你来说是什么?”这一问题,并记录了他们的观点。通过系统的数据编码和解读过程,我们在他们的回答中发现了反复出现的模式。这种方法使我们能够揭示他们观点的深度和复杂性,为医疗保健专业人员所理解的尊严的多面性提供了宝贵的见解。我们的研究结果表明,医疗保健专业人员对尊严有着细致入微的理解,既认识到主观因素,也认识到适用于所有人的普遍方面,这与理论解释相符。然而,概念上的模糊性仍然是一个挑战。