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新冠疫情对唐氏综合征患者的影响:一项克罗地亚的调查

The Impact of the COVID-19 Pandemic on Individuals with Down Syndrome: A Croatian Survey.

作者信息

Barišić A, Ergović Ravančić M, Majstorović D, Vraneković J

机构信息

Department of Gynaecology and Obstetrics, Clinical Hospital Centre Rijeka, Rijeka, Croatia.

Faculty of Tourism and Rural Development in Požega, Croatia.

出版信息

Balkan J Med Genet. 2024 Sep 6;27(1):51-58. doi: 10.2478/bjmg-2024-0007. eCollection 2024 Jun.

Abstract

BACKGROUND

Severe acute respiratory syndrome coronavirus-2 infection has spread uncontrollably worldwide. Among the most vulnerable groups in society are populations with multiple comorbidities, including individuals with Down syndrome (DS).

AIM

Our aim was to conduct an online survey to assess the impact of COVID-19 on DS individuals in Croatia. We also explored the views of their parents and caregivers about the challenges they faced during COVID-19.

METHODS

The anonymous online survey was launched in March 2022 and remained open until October 2022. Participants were conducted online through closed group on Facebook. The survey included questions about participant characteristics, medical information, clinical presentation of COVID-19, and challenges faced by the parents during COVID-19.

RESULTS

A total of 268 surveys were collected and analysed. We found that age and body mass index of DS individuals were significantly and positively correlated with the clinical presentation of COVID-19. Lack of social activities, cancelled therapies, and psychological problems were the most frequently cited challenges during the pandemic.

CONCLUSION

Clinicians and caregivers should primarily be alert to the same COVID-19 signs and symptoms that occur in the general population (fever, cough, shortness of breath). Ongoing therapies, social activities, and psychological support should be cited as indispensable for maintaining physical health and emotional well-being in DS individuals.

摘要

背景

严重急性呼吸综合征冠状病毒2感染已在全球范围内失控传播。社会中最脆弱的群体包括患有多种合并症的人群,其中就有唐氏综合征(DS)患者。

目的

我们的目的是开展一项在线调查,以评估新冠病毒病(COVID-19)对克罗地亚DS患者的影响。我们还探讨了他们的父母和照料者对他们在COVID-19期间所面临挑战的看法。

方法

匿名在线调查于2022年3月启动,一直开放至2022年10月。参与者通过脸书上的封闭群组进行在线调查。该调查包括有关参与者特征、医疗信息、COVID-19的临床表现以及父母在COVID-19期间所面临挑战的问题。

结果

共收集并分析了268份调查问卷。我们发现,DS患者的年龄和体重指数与COVID-19的临床表现显著正相关。缺乏社交活动、治疗取消以及心理问题是疫情期间最常被提及的挑战。

结论

临床医生和照料者应首先警惕普通人群中出现的相同COVID-19体征和症状(发热、咳嗽、呼吸急促)。持续的治疗、社交活动和心理支持对于维持DS患者的身体健康和情绪健康不可或缺。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4e16/11383832/f34a79c3fb9c/j_bjmg-2024-0007_fig_001.jpg

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