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为 STARS 计划而努力:实施一项基于证据的计划,以满足儿童癌症幸存者及其家庭的治疗结束后的需求。

Shooting for the STARS: Implementing an Evidence-Based Program to Meet the End of Treatment Needs of Childhood Cancer Survivors and Their Families.

机构信息

Center for Cancer and Blood Disorders, Connecticut Children's, Hartford, CT, USA.

Child and Family Support Services, Connecticut Children's, Hartford, CT, USA.

出版信息

J Pediatr Hematol Oncol Nurs. 2024 Jul;41(4):240-251. doi: 10.1177/27527530241245636.

Abstract

The end of treatment (EOT) is a significant time point along the childhood cancer treatment-survivorship continuum, and is recognized as a time when childhood cancer survivors (CCS) and their families experience significant vulnerability and stress. There is a call by families and healthcare professionals alike for standardized, comprehensive EOT services to successfully navigate through this transition period and better cope with posttreatment medical, physical, and social-emotional issues. A multidisciplinary team of pediatric oncology health care professionals developed and implemented a two-session psychoeducational program to address these EOT needs. To evaluate the , a pretest-posttest repeated measures design was utilized. A convenience sample of 47 parents/caregivers and 29 CCS completed surveys before, during, and after the EOT services were received. Analysis of relationships and changes over time was conducted using Spearman-ranked correlations and Friedman tests, a nonparametric repeated measures analysis of variance. All respondents reported program satisfaction, with 94.7% feeling somewhat or very prepared for ending treatment. Participants' distress levels tended to decrease over time. Parent/caregiver-reported levels of CCS' anxiety, fatigue, pain interference, and physical mobility significantly improved over the time period during which families participated in the . This nurse-led, evidence-based program was determined to be feasible and acceptable. It may contribute to improved health-related quality of life and decrease distress over time.

摘要

治疗结束(EOT)是儿童癌症治疗-生存连续体中的一个重要时间点,被认为是儿童癌症幸存者(CCS)及其家庭经历重大脆弱性和压力的时期。家庭和医疗保健专业人员都呼吁提供标准化、全面的 EOT 服务,以成功过渡这个时期,并更好地应对治疗后医疗、身体和社会情感问题。一组儿科肿瘤学医疗保健专业人员开发并实施了一个两部分的心理教育计划,以满足这些 EOT 需求。为了评估该计划,采用了预测试-后测试重复测量设计。47 名父母/照顾者和 29 名 CCS 完成了调查,分别在接受 EOT 服务之前、期间和之后进行。使用 Spearman 等级相关和 Friedman 检验(非参数重复测量方差分析)对关系和随时间的变化进行分析。所有受访者均报告对该计划感到满意,其中 94.7%的人表示对结束治疗有一定程度或非常充分的准备。参与者的焦虑程度随着时间的推移而降低。父母/照顾者报告的 CCS 的焦虑、疲劳、疼痛干扰和身体活动能力水平在家庭参与该计划的时间段内显著改善。这个由护士主导的、基于证据的计划被确定是可行和可接受的。它可能有助于提高与健康相关的生活质量,并随着时间的推移减轻痛苦。

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