• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

呼吸机依赖儿童的学校适应经验:母亲观点的现象学研究。

School adjustment experiences of ventilator-dependent children: A phenomenological study of mothers' perspectives.

机构信息

Department of Nursing, Chang Gung Memorial Hospital, Linkou, Taiwan.

School of Nursing, National Taipei University of Nursing and Health Sciences, Taiwan.

出版信息

J Pediatr Nurs. 2024 Nov-Dec;79:241-248. doi: 10.1016/j.pedn.2024.10.026. Epub 2024 Oct 24.

DOI:10.1016/j.pedn.2024.10.026
PMID:39454424
Abstract

PURPOSE

This study aimed to describe the experiences of ventilator-dependent children (VDC) in adjusting to school life from the perspectives of their mothers.

DESIGN AND METHOD

This study employed a descriptive phenomenological approach. From July 2021 to September 2022, ten mothers of VDC were recruited via purposive sampling and underwent in-depth individual interviews. Data were analyzed using Colaizzi's phenomenological method. This study adheres to the COREQ guidelines for qualitative study.

FINDINGS

Four themes emerged: (1) the transition and burden of the mother's role; (2) positive adjustment and assessment of resources; (3) develop strategies to meet health and learning needs; (4) expectations for accessible school environments.

CONCLUSIONS

The mothers extensively assessed and adjusted their coping strategies on a rolling basis to ensure that their children received the resources that met their individual needs, promoted peer interactions, and helped adjustment to school life. The children's improvement and progress surpassed their mothers' expectations and demonstrated the benefits of a school education. Future educational settings should focus on building accessible school environments for special needs children.

PRACTICE IMPLICATIONS

These findings allow healthcare professionals to assess the needs of VDC at different educational levels and create care plans that meet their healthcare and educational needs. This study also provides a reference for amending policies and regulations on individualized educational programs for VDC and developing guidelines for realizing accessible school environments to help them adjust to school life.

摘要

目的

本研究旨在从母亲的角度描述依赖呼吸机的儿童(VDC)适应学校生活的体验。

设计和方法

本研究采用描述性现象学方法。2021 年 7 月至 2022 年 9 月,通过目的抽样招募了 10 名 VDC 的母亲,并对其进行了深入的个人访谈。使用 Colaizzi 的现象学方法对数据进行分析。本研究遵循 COREQ 指南进行定性研究。

结果

出现了四个主题:(1)母亲角色的转变和负担;(2)积极调整和评估资源;(3)制定满足健康和学习需求的策略;(4)期望无障碍的学校环境。

结论

母亲们广泛地评估和调整他们的应对策略,以确保他们的孩子获得满足个人需求的资源,促进同伴互动,并帮助他们适应学校生活。孩子们的进步超出了母亲的预期,展示了学校教育的好处。未来的教育环境应重点为特殊需求儿童建立无障碍的学校环境。

实践意义

这些发现使医疗保健专业人员能够评估不同教育水平的 VDC 的需求,并制定满足他们的医疗和教育需求的护理计划。本研究还为修订 VDC 的个性化教育计划的政策和法规以及制定无障碍学校环境指南提供了参考,以帮助他们适应学校生活。

相似文献

1
School adjustment experiences of ventilator-dependent children: A phenomenological study of mothers' perspectives.呼吸机依赖儿童的学校适应经验:母亲观点的现象学研究。
J Pediatr Nurs. 2024 Nov-Dec;79:241-248. doi: 10.1016/j.pedn.2024.10.026. Epub 2024 Oct 24.
2
The lived experience of mothers caring for school-age children with Pompe disease: A qualitative study.母亲照顾庞贝病学龄儿童的生活体验:一项定性研究。
J Pediatr Nurs. 2024 Nov-Dec;79:24-31. doi: 10.1016/j.pedn.2024.08.008. Epub 2024 Aug 26.
3
Children and adolescents living with atopic eczema: an interpretive phenomenological study with Chinese mothers.中文译文:患有特应性皮炎的儿童和青少年:中国母亲的阐释现象学研究。
J Adv Nurs. 2012 Oct;68(10):2247-55. doi: 10.1111/j.1365-2648.2011.05915.x. Epub 2011 Dec 28.
4
Experiences of patients, parents, and healthcare professionals in the process of transitioning from hospital to community after inpatient pediatric rehabilitation among children with special health care needs.有特殊医疗需求儿童在住院儿科康复后从医院过渡到社区过程中患者、家长及医疗保健专业人员的经历。
Disabil Rehabil. 2025 Feb;47(4):1001-1011. doi: 10.1080/09638288.2024.2362951. Epub 2024 Jul 1.
5
'Every day I worry about something': A qualitative exploration of children's experiences of stress and coping.“每天我都在担心一些事情”:一项定性研究探索儿童的压力和应对体验。
Br J Health Psychol. 2019 Nov;24(4):931-952. doi: 10.1111/bjhp.12387. Epub 2019 Aug 26.
6
Mothers' Perspectives on the Inclusion of Young Autistic Children in Kuwait.科威特自闭症儿童融入社会:母亲的观点
J Autism Dev Disord. 2020 Apr;50(4):1198-1209. doi: 10.1007/s10803-019-04351-z.
7
Perspectives and experiences of mothers of school-age children with asthma: a qualitative study.哮喘学龄儿童母亲的观点和经验:一项定性研究。
J Asthma. 2024 May;61(5):444-452. doi: 10.1080/02770903.2023.2288322. Epub 2023 Dec 4.
8
The experiences of primary caregivers raising school-aged children with attention-deficit hyperactivity disorder.照顾学龄期注意缺陷多动障碍儿童的主要照顾者的体验。
J Clin Nurs. 2009 Jun;18(12):1693-702. doi: 10.1111/j.1365-2702.2008.02604.x. Epub 2009 Jan 30.
9
Towards a richer understanding of school-age children's experiences of domestic violence: the voices of children and their mothers.更深入地理解学龄儿童遭受家庭暴力的经历:儿童及其母亲的声音。
Clin Child Psychol Psychiatry. 2014 Apr;19(2):184-201. doi: 10.1177/1359104513485082. Epub 2013 Apr 24.
10
Psychosocial dimensions of being a child in women's shelters: A phenomenological study on the experiences of battered women - A case study from Türkiye's Northern Region.妇女庇护所中儿童的心理社会维度:受虐妇女经历的现象学研究-来自土耳其北部地区的案例研究。
Int J Soc Psychiatry. 2024 Aug;70(5):945-956. doi: 10.1177/00207640241245651. Epub 2024 Apr 14.