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呼吸机依赖儿童的学校适应经验:母亲观点的现象学研究。

School adjustment experiences of ventilator-dependent children: A phenomenological study of mothers' perspectives.

机构信息

Department of Nursing, Chang Gung Memorial Hospital, Linkou, Taiwan.

School of Nursing, National Taipei University of Nursing and Health Sciences, Taiwan.

出版信息

J Pediatr Nurs. 2024 Nov-Dec;79:241-248. doi: 10.1016/j.pedn.2024.10.026. Epub 2024 Oct 24.

Abstract

PURPOSE

This study aimed to describe the experiences of ventilator-dependent children (VDC) in adjusting to school life from the perspectives of their mothers.

DESIGN AND METHOD

This study employed a descriptive phenomenological approach. From July 2021 to September 2022, ten mothers of VDC were recruited via purposive sampling and underwent in-depth individual interviews. Data were analyzed using Colaizzi's phenomenological method. This study adheres to the COREQ guidelines for qualitative study.

FINDINGS

Four themes emerged: (1) the transition and burden of the mother's role; (2) positive adjustment and assessment of resources; (3) develop strategies to meet health and learning needs; (4) expectations for accessible school environments.

CONCLUSIONS

The mothers extensively assessed and adjusted their coping strategies on a rolling basis to ensure that their children received the resources that met their individual needs, promoted peer interactions, and helped adjustment to school life. The children's improvement and progress surpassed their mothers' expectations and demonstrated the benefits of a school education. Future educational settings should focus on building accessible school environments for special needs children.

PRACTICE IMPLICATIONS

These findings allow healthcare professionals to assess the needs of VDC at different educational levels and create care plans that meet their healthcare and educational needs. This study also provides a reference for amending policies and regulations on individualized educational programs for VDC and developing guidelines for realizing accessible school environments to help them adjust to school life.

摘要

目的

本研究旨在从母亲的角度描述依赖呼吸机的儿童(VDC)适应学校生活的体验。

设计和方法

本研究采用描述性现象学方法。2021 年 7 月至 2022 年 9 月,通过目的抽样招募了 10 名 VDC 的母亲,并对其进行了深入的个人访谈。使用 Colaizzi 的现象学方法对数据进行分析。本研究遵循 COREQ 指南进行定性研究。

结果

出现了四个主题:(1)母亲角色的转变和负担;(2)积极调整和评估资源;(3)制定满足健康和学习需求的策略;(4)期望无障碍的学校环境。

结论

母亲们广泛地评估和调整他们的应对策略,以确保他们的孩子获得满足个人需求的资源,促进同伴互动,并帮助他们适应学校生活。孩子们的进步超出了母亲的预期,展示了学校教育的好处。未来的教育环境应重点为特殊需求儿童建立无障碍的学校环境。

实践意义

这些发现使医疗保健专业人员能够评估不同教育水平的 VDC 的需求,并制定满足他们的医疗和教育需求的护理计划。本研究还为修订 VDC 的个性化教育计划的政策和法规以及制定无障碍学校环境指南提供了参考,以帮助他们适应学校生活。

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