Guinness Sophia, Dourka Jasmeen, Galway Sarah C, Healey Hannah, Lokker Cynthia
Faculty of Health Sciences, Global Health, McMaster University, 1280 Main St W Hamilton, Ontario, L8S 4L8, Canada.
Faculty of Applied Health Sciences, Brock University, 1812 Sir Isaac Brock way, St. Catharines, ON, L2S 3A1, Canada.
J Eat Disord. 2024 Oct 29;12(1):169. doi: 10.1186/s40337-024-01110-z.
Community-based eating disorder (ED) treatment frequently includes manualized group-based psychoeducation facilitated by a mental health clinician. Body Brave, a non-profit ED organization, developed a novel, participant-guided, community-based virtual healthcare provider (HCP)-facilitated support program called On the Journey (OtJ). The program was designed for people with longstanding EDs who had previously participated in group or individual ED programs but require continued support in their recovery. The purpose of the study was to describe the development and components of OtJ and to understand participant perceptions of the program and its effect on their recovery.
Using a formative and community-engaged research design, we conducted semi-structured interviews with three OtJ facilitators and focus groups with twelve OtJ clients. Transcripts were analyzed using Braun and Clarke's six-stage approach to reflexive thematic analysis.
Four main themes were generated from the data (1) "Designing and Evolving OtJ" (2) "Is OtJ a Treatment or Support Group?" (3) "Fostering a Safe Environment throughout Program Delivery" and (4) "The Power of Lived Experience." Clients noted several strengths of the OtJ program: fostering a sense of community, valuing client autonomy, and providing accessible ED support.
Key considerations for other organizations looking to offer programming similar to OtJ include having skilled and clinically trained facilitators and prescreening discussion topics to ensure that conversations are productive towards recovery. OtJ supports people with longstanding EDs, and other organizations could consider adopting a similar model of care. This study contributes to the growing body of including lived ED experience in research.
基于社区的饮食失调（ED）治疗通常包括由心理健康临床医生实施的基于手册的团体心理教育。非营利性饮食失调组织“身体勇敢”（Body Brave）开发了一种新颖的、由参与者引导的、基于社区的虚拟医疗服务提供者（HCP）推动的支持项目，名为“踏上旅程”（OtJ）。该项目是为患有长期饮食失调症的人设计的，他们之前参加过团体或个人饮食失调项目，但在康复过程中需要持续的支持。本研究的目的是描述OtJ的开发和组成部分，并了解参与者对该项目的看法及其对他们康复的影响。
采用形成性和社区参与式研究设计，我们对三名OtJ促进者进行了半结构化访谈，并与十二名OtJ客户进行了焦点小组访谈。使用布劳恩和克拉克的六阶段反思性主题分析方法对访谈记录进行了分析。
数据产生了四个主要主题：（1）“设计和发展OtJ”（2）“OtJ是治疗小组还是支持小组？”（3）“在整个项目实施过程中营造安全的环境”和（4）“生活经验的力量”。客户指出了OtJ项目的几个优点：营造社区感、重视客户自主权以及提供可获得的饮食失调支持。
其他希望提供类似于OtJ项目的组织的关键考虑因素包括拥有熟练且经过临床培训的促进者，并对讨论主题进行预筛选，以确保对话对康复具有成效。OtJ为患有长期饮食失调症的人提供支持，其他组织可以考虑采用类似的护理模式。本研究为将饮食失调的生活经验纳入研究的不断增加的文献做出了贡献。
