Department of Clinical Research Design and Evaluation, SAIHST, Sungkyunkwan University, Seoul, South Korea; Institute for Quality of Life in Cancer, Samsung Medical Center, Seoul, South Korea.
Department of Rheumatology, Hanyang University Hospital for Rheumatic Diseases, Seoul, South Korea.
Semin Arthritis Rheum. 2024 Dec;69:152575. doi: 10.1016/j.semarthrit.2024.152575. Epub 2024 Oct 28.
This review aimed to map the existing the information and communication technology (ICT)-based patient education for autoimmune inflammatory rheumatic diseases and identify key effectiveness factors and guidelines for professionals.
A scoping review systematically reviewed PubMed, Cochrane library, EMBASE and Web of Science. We designed search strategies to identify ICT-based patient education for autoimmune inflammatory rheumatic diseases focused on rheumatoid arthritis, ankylosing spondylitis, and systemic lupus erythematosus, published between January 2011 and October 2023. Data extraction was independently screened by two reviewers according to the eligibility criteria.
Of 13,861 records, 18 met the eligibility criteria. Most studies were randomized controlled trials, primarily conducted in the USA, focusing on rheumatoid arthritis. ICT-based interventions included web-based platforms, aiming to improve self-management, medication adherence, with most interventions showing significant improvements. Digital tools such as websites, chatbots were common. Five groups representing the ICT functions were identified: digital self-management tools, multimedia learning materials, personalized educational sessions, behavior change and empathy games, and interactive online communities and peer support. Most studies lacked theoretical frameworks, or guidelines for developing patient education.
ICT-based patient education has significant potential for enhancing self-management and behavior changes in patients with autoimmune inflammatory rheumatic diseases.
本综述旨在绘制现有的基于信息和通信技术（ICT）的自身免疫性炎症性风湿病患者教育，并确定关键的有效性因素和专业人员指南。
我们系统地检索了 PubMed、Cochrane 图书馆、EMBASE 和 Web of Science，以确定 2011 年 1 月至 2023 年 10 月期间发表的、针对类风湿性关节炎、强直性脊柱炎和系统性红斑狼疮的基于 ICT 的自身免疫性炎症性风湿病患者教育的文献。根据纳入标准，由两名评审员独立筛选数据提取。
在 13861 条记录中，有 18 项符合纳入标准。大多数研究为随机对照试验，主要在美国进行，研究对象为类风湿性关节炎患者。基于 ICT 的干预措施包括基于网络的平台，旨在改善自我管理和药物依从性，大多数干预措施显示出显著改善。常见的数字工具包括网站、聊天机器人等。确定了代表 ICT 功能的五个组：数字自我管理工具、多媒体学习材料、个性化教育课程、行为改变和同理心游戏以及互动在线社区和同伴支持。大多数研究缺乏理论框架或患者教育开发指南。
基于 ICT 的患者教育在增强自身免疫性炎症性风湿病患者的自我管理和行为改变方面具有重要潜力。
