Rosen Roni Y, Bartsch Christan, Thompson Errika, Letica-Kriegel Allison S, Kaur Yashjot, Ng Susan, Vaynrub Maksim, Rosa William E, Broach Vance, Epstein Andrew S, Nelson Judith E, Nash Garrett M, Goldfrank Deborah
Department of Surgery, Memorial Sloan Kettering Cancer Center, New York, New York, USA.
Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York, USA.
J Surg Oncol. 2025 Mar;131(4):607-613. doi: 10.1002/jso.27974. Epub 2024 Nov 11.
Infrequent preoperative goals of care (GOC) documentation leads to challenges in medical decision-making when patients experience postoperative complications. We evaluated the feasibility of enhancing GOC documentation through a patient portal-based values questionnaire.
A patient values questionnaire (PVQ) was distributed to patients before their Gynecologic Surgical Oncology clinic appointments via an electronic health record (EHR)-based portal from June to October 2023. Surgeons and advanced practice providers were encouraged to address PVQ responses during clinic appointments. Patient acceptability surveys were sent to PVQ respondents and clinicians were interviewed to assess feasibility and acceptability.
PVQ response rate was 225/383 (59%); 29% of all patients had an established cancer diagnosis. Clinicians deemed preoperative GOC documentation important and the PVQ valuable to prepare for unexpected postoperative complications. Accessing questionnaire responses through the EHR was a technical barrier. Clinicians agreed that GOC should be addressed after diagnosis and treatment discussions, but before surgery. Ninety percent of patients felt comfortable discussing GOC at their first clinic appointment.
Patient portals facilitate preoperative GOC documentation, however, clarifying and integrating values into care require ongoing discussions between clinicians and patients. Optimal timing of GOC elicitation is posttreatment planning and before surgery when the patient is most informed.
术前护理目标(GOC)记录不常见,导致患者出现术后并发症时医疗决策面临挑战。我们评估了通过基于患者门户网站的价值观问卷来加强GOC记录的可行性。
2023年6月至10月,通过基于电子健康记录(EHR)的门户网站,在患者预约妇科肿瘤外科门诊之前向其发放患者价值观问卷(PVQ)。鼓励外科医生和高级执业提供者在门诊预约期间讨论PVQ的回复。向PVQ受访者发送患者可接受性调查,并对临床医生进行访谈,以评估可行性和可接受性。
PVQ回复率为225/383(59%);所有患者中有29%已确诊癌症。临床医生认为术前GOC记录很重要,PVQ对为意外术后并发症做准备很有价值。通过电子健康记录获取问卷回复存在技术障碍。临床医生一致认为,GOC应在诊断和治疗讨论之后、手术之前进行探讨。90%的患者在首次门诊预约时对讨论GOC感到自在。
患者门户网站有助于术前GOC记录,然而,将价值观阐明并融入护理需要临床医生和患者之间持续讨论。获取GOC的最佳时机是在治疗计划制定之后、手术之前,此时患者了解的信息最多。