精神病康复、污名化和精神卫生保健中的微侵犯动态:服务使用者叙述的定性研究。
Dynamics of recovery in psychosis, stigmatization, and microaggressions in mental healthcare: a qualitative study of service users' narratives.
机构信息
University of Amsterdam, Amsterdam, The Netherlands.
Erasmus School of Health Policy & Management, Erasmus University, Oudlaan 50, Rotterdam, 3062 PA, The Netherlands.
出版信息
BMC Psychiatry. 2024 Nov 19;24(1):825. doi: 10.1186/s12888-024-06262-5.
BACKGROUND
Collaborative care relationships form a key component of recovery-oriented mental healthcare, but can be disrupted if service users feel judged by professionals. Professionals can express stigmatizing attitudes through microaggressions, i.e. subtle forms of discrimination that have a negative cumulative effect. People with psychosis have been found to regularly experience overt and subtle forms of stigma in mental healthcare. This study aims to expand our understanding of the various forms and consequences of microaggression from a service user perspective.
METHODS
In this qualitative study, we analysed narratives of people with psychosis purposefully selected from two collections of Dutch patient-authored stories ('Verhalenbank psychiatrie' and 'Patientervaringsverhalen'), including two books and nine transcripts of low-structured interviews. We performed thematic analysis to identify different forms of microaggression and additionally used narrative analysis to gain insight into the experienced consequences for recovery.
RESULTS
We identified three main forms of microaggression: microaggressions that dehumanize; microaggressions that disregard service users' perspectives; and microaggressions that convey hopelessness. Experienced consequences of microaggression included feelings of loneliness, powerlessness and uselessness, acts of despair, resistance or withdrawal, and disengagement from services. Microaggressions were found to create additional recovery needs that were often addressed outside mental healthcare.
CONCLUSION
Our findings illustrate the gap between ideals concerning collaborative care relationships and the everyday experiences of service users. Service users often experienced an absence of relationship-building in mental healthcare, with negative consequences for their recovery process. Our identification of different forms of microaggression can raise awareness and effectuate behavioural change in professionals and contribute to the emancipation of people with psychosis.
背景
协作式护理关系是康复导向型精神卫生保健的重要组成部分,但如果服务使用者感到被专业人员评判,这种关系可能会受到干扰。专业人员可能会通过微侵犯表达污名化态度,即具有负面影响的微妙歧视形式。已经发现,精神病患者在精神保健中经常经历明显和微妙的污名化形式。本研究旨在从服务使用者的角度扩展我们对微侵犯各种形式和后果的理解。
方法
在这项定性研究中,我们从两个荷兰患者撰写的故事集(“Verhalenbank psychiatrie”和“Patientervaringsverhalen”)中有意选择精神病患者的叙述进行分析,包括两本书和九份低结构访谈的转录本。我们进行了主题分析以识别不同形式的微侵犯,并额外使用叙事分析来深入了解对康复的经验后果。
结果
我们确定了三种主要形式的微侵犯:使人非人化的微侵犯;无视服务使用者观点的微侵犯;传达绝望的微侵犯。微侵犯的经历后果包括孤独感、无力感和无用感、绝望行为、抵抗或退缩,以及与服务脱节。微侵犯被发现会产生额外的康复需求,这些需求通常在精神保健之外得到满足。
结论
我们的研究结果说明了理想的协作式护理关系与服务使用者的日常经历之间存在差距。服务使用者经常在精神保健中体验到缺乏关系建设,这对他们的康复过程产生了负面影响。我们对不同形式的微侵犯的识别可以提高专业人员的意识,促使他们改变行为,并有助于精神病患者的解放。