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肌肉萎缩症的管理:一项临床综述。

The management of muscular dystrophy: a clinical review.

作者信息

Siegel I M

出版信息

Muscle Nerve. 1978 Nov-Dec;1(6):453-60. doi: 10.1002/mus.880010603.

Abstract

The optimal management of muscular dystrophy is multidisciplinary and aggressive in nature. Serial assessment aids in determining the functional stage of the disease and in indicating specific therapies. Physical therapy can augment strength through exercise and relieve contracture through passive stretching. Occupational therapy is employed to help the patient manage his activities of daily living within the restrictions imposed on him by his disease. Progressive disability can be delayed through a variety of physiatric and orthopedic techniques, including surgical release of lower-extremity contracture, repair of foot and ankle deformity, and correction of scoliosis. Appropriate orthoses are available, as are a variety of special devices to facilitate ongoing care for postambulatory patients. Physicians treating the muscular dystrophies should be aware of the complications of these diseases, particularly cardiomyopathy, pulmonary failure, and psychological and social problems.

摘要

肌肉萎缩症的最佳管理本质上是多学科且积极主动的。连续评估有助于确定疾病的功能阶段并指明具体治疗方法。物理治疗可通过锻炼增强力量,并通过被动拉伸缓解挛缩。职业治疗用于帮助患者在疾病所施加的限制范围内管理其日常生活活动。通过多种物理治疗和矫形技术,包括手术松解下肢挛缩、修复足踝畸形以及矫正脊柱侧弯,可延缓进行性残疾。有合适的矫形器以及各种特殊装置,以方便对非行走患者进行持续护理。治疗肌肉萎缩症的医生应了解这些疾病的并发症,尤其是心肌病、肺衰竭以及心理和社会问题。

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