Iyngkaran Pupalan, Fazli Fareda, Nguyen Hayden, Patel Taksh, Hanna Fahad
Melbourne Clninical School, University of Notre Dame, Melbourne, VIC 3030, Australia.
Program of Public Health, Department of Health and Education, Torrens University Australia, Melbourne, VIC 3000, Australia.
J Clin Med. 2025 Apr 19;14(8):2832. doi: 10.3390/jcm14082832.
Chronic disease self-management (CDSM) interventions have shown promise in improving patient outcomes in heart failure (HF), particularly for those with reduced ejection fraction (HFrEF). Patient-centric self-management programs often incorporate key components such as education, self-monitoring, and goal setting. However, the extent to which these components are consistently reported and integrated into studies remains unclear. This umbrella narrative review aims to analyze systematic reviews to assess the consistency of reporting on patient-centric self-management components implemented in trials and studies. This umbrella narrative review synthesized findings from systematic reviews and meta-analyses published between 2000 and 2023 for CDSM tools in HF. Eligible studies were assessed for the presence and consistency of reporting on education, self-monitoring, and goal setting in self-management interventions for HFrEF. Data extraction focused on the frequency of reporting these components and the gaps in reporting long-term patient outcomes. Among the included systematic reviews, education was the most consistently reported component (100%), while self-monitoring and goal setting were each reported in around 50% of studies. Reporting of long-term outcomes, such as mortality and quality of life, was highly variable and often absent. These inconsistencies highlight significant gaps in the evidence base for CDSM interventions. This review identifies gaps in the consistent reporting of key CDSM components in systematic reviews of HFrEF interventions. The inconsistent inclusion of all three components together and limited reporting of long-term outcomes may hinder the development of a robust evidence base for the adoption of these tools in HF guidelines. Future studies should prioritize comprehensive reporting to strengthen the foundation for patient-centric self-management strategies in HF care. registration number CRD42023431539.
慢性病自我管理（CDSM）干预措施已显示出有望改善心力衰竭（HF）患者的预后，尤其是对于射血分数降低（HFrEF）的患者。以患者为中心的自我管理项目通常包含教育、自我监测和目标设定等关键要素。然而，这些要素在研究中得到一致报告并整合的程度仍不明确。本综合性叙述性综述旨在分析系统评价，以评估在试验和研究中实施的以患者为中心的自我管理要素的报告一致性。 本综合性叙述性综述综合了2000年至2023年间发表的关于HF中CDSM工具的系统评价和荟萃分析的结果。对符合条件的研究进行评估，以确定在HFrEF自我管理干预措施中教育、自我监测和目标设定的报告情况及一致性。数据提取重点关注这些要素的报告频率以及长期患者预后报告中的差距。 在纳入的系统评价中，教育是报告最一致的要素（100%），而自我监测和目标设定在约50%的研究中有所报告。死亡率和生活质量等长期预后的报告差异很大，且常常缺失。这些不一致突出了CDSM干预措施证据基础中的重大差距。 本综述确定了在HFrEF干预措施系统评价中关键CDSM要素一致报告方面的差距。这三个要素未全部一致纳入且长期预后报告有限，可能会阻碍在HF指南中采用这些工具的强有力证据基础的发展。未来的研究应优先进行全面报告，以加强HF护理中以患者为中心的自我管理策略的基础。 注册号CRD42023431539。
