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慢性伤口患者生活质量的结局指标:一项范围综述

Outcome Measures of Quality of Life for People With Chronic Wounds: A Scoping Review.

作者信息

Dantas Janislei Soares, Teófilo Tiago José Silveira, Silva Junior Sergio Vital da, Nascimento Natalia Claudino Do, Eloy Rafaelly Andressa de Lucena, Silva Ana Cristina de Oliveira E, Freire Maria Eliane Moreira

机构信息

Janislei Soares Dantas, PhD Student in Nursing, Postgraduate Nursing Program/Federal University of Paraíba (PPGENF/UFPB); Lauro Wanderley University Hospital-Brazilian Company of Hospital Services (HULW/EBSERH), Federal University of Paraíba (UFPB), João Pessoa/PB, Brazil.

Tiago José Silveira Teófilo, PhD Student in Nursing Sciences, University of Porto, Portugal; Lauro Wanderley University Hospital -Brazilian Company of Hospital Services (HULW/EBSERH), Federal University of Paraíba (UFPB), João Pessoa/PB, Brazil.

出版信息

J Wound Ostomy Continence Nurs. 2025;52(3):198-204. doi: 10.1097/WON.0000000000001170. Epub 2025 May 16.

Abstract

PURPOSE

The aim of this scoping review was to identify validated instruments measuring Patient-Reported Outcome Measures (PROMs) used in research and clinical practice that are deigned to measure the health-related quality of life (HRQoL) of people with chronic wounds.

METHOD

Scoping literature review.

SEARCH STRATEGY

A search of the electronic databases MEDLINE, PubMed, CINAHL, Web of Science, and Scopus that spanned the years 1990 to April 2024 was conducted. The initial search resulted in 13 094 records. Removal of duplicates, title and abstract searches, and final selection of elements that were read in full yielded 30 records, along with 2 records identified from reference lists of critical articles.

FINDINGS

Twelve validated instruments measuring PROMs assessing HRQoL were identified; 6 were generic and 6 were specific to chronic wounds. The most frequently used generic instruments were the Short Form 36 Health Survey Questionnaire and the EuroQol-five Dimensions-Five levels; they were used in 6 (18.8%) and 3 (9.4%) studies, respectively. The Cardiff Wound Impact Schedule and the Wound-Qol were the most frequently wound-specific instruments; both were applied in 5 (15.6%) studies each. Both condition-specific and generic instruments measure 1 or more conceptual domains that cover the multidimensionality of HRQoL. Generic instruments allow comparison of persons with chronic wounds to populations with other chronic conditions and the general population; however, generic instruments may underestimate changes in QoL in populations with chronic wounds. Condition-specific instruments provide additional information about HRQoL and they are more likely to be responsive to the effects of specific interventions.

IMPLICATIONS

Research related to instruments that measure PROMs for HRQoL for patients with chronic wounds is limited. Additional research such as longitudinal and randomized studies are needed to strengthen the evidence regarding the applicability and dissemination of PROMS to assess HRQoL in this population.

摘要

目的

本范围综述的目的是识别在研究和临床实践中用于测量患者报告结局指标(PROMs)的经过验证的工具,这些工具旨在测量慢性伤口患者的健康相关生活质量(HRQoL)。

方法

范围文献综述。

检索策略

对1990年至2024年4月期间的电子数据库MEDLINE、PubMed、CINAHL、Web of Science和Scopus进行了检索。初步检索产生了13094条记录。去除重复记录、进行标题和摘要检索,并最终选择全文阅读的文献,得到30条记录,另外从关键文章的参考文献列表中识别出2条记录。

结果

识别出12种经过验证的测量PROMs以评估HRQoL的工具;其中6种是通用工具,6种是针对慢性伤口的特定工具。最常用的通用工具是简短健康调查问卷36项版和欧洲五维度五水平健康量表;它们分别在6项(18.8%)和3项(9.4%)研究中使用。加的夫伤口影响量表和伤口生活质量量表是最常用的针对伤口的特定工具;两者均在5项(15.6%)研究中应用。特定疾病工具和通用工具都测量1个或多个概念领域,这些领域涵盖了HRQoL的多维度性。通用工具允许将慢性伤口患者与其他慢性病患者群体以及普通人群进行比较;然而,通用工具可能会低估慢性伤口患者群体生活质量的变化。特定疾病工具提供了关于HRQoL的额外信息,并且它们更有可能对特定干预措施的效果产生反应。

启示

关于测量慢性伤口患者HRQoL的PROMs工具的研究有限。需要进行更多的研究,如纵向研究和随机研究,以加强关于PROMs在该人群中评估HRQoL的适用性和推广性的证据。

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