Mayers Pat M, Mobara Galima, Fouché Nicola
Pat M. Mayers, PhD, Division of Nursing and Midwifery, Faculty of Health Sciences, University of Cape Town, and School of Nursing, Faculty of Community and Health Sciences, University of the Western Cape, Cape Town, South Africa.
Galima Mobara, MSc Nursing, Division of Nursing and Midwifery, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.
J Wound Ostomy Continence Nurs. 2025;52(3):205-211. doi: 10.1097/WON.0000000000001169. Epub 2025 May 16.
The purpose of the study was to explore the lived experience of Muslims with an ostomy with respect to their cultural and religious practices.
A qualitative, phenomenological design.
Seven purposively selected participants from a major metropolitan area in South Africa who had lived with an ostomy for 6 months or more were interviewed.
Interviews were conducted with each participant in the setting of their choice and audio recorded. Transcribed interviews were analyzed using Colaizzi's analytic approach. Data were collected over several months in 2013.
Four themes were generated: They are referred to as the 4 "S's" of living with an ostomy: silence, spirituality, sanitary practices, and survival. Silence was related to the perceived stigma and judgment of others. Participants felt more able to engage in their religious activities as they became aware of the mercy of Allah. Participants encountered difficulties with purification rituals and conforming to the strict requirements for worship. Extra time and attention were given to the sanitary practices in preparation for the rituals of worship. Survival and quality of life were linked to the support received by family, health care providers, and the religious community.
A need exists in the Muslim community for support groups for persons living with an ostomy, and for easily accessible guidance on religious practices and stoma care, particularly in relation to purification preparation for religious obligations. Cultural-religious issues pertaining to ostomy care and support for Muslim patients should be included in the education of health professionals.
本研究旨在探讨有造口的穆斯林在其文化和宗教习俗方面的生活经历。
质性现象学设计。
从南非一个主要大都市地区有目的地选取了7名造口患者作为参与者，他们造口术后已生活6个月或更长时间，并接受了访谈。
在每位参与者选择好的环境中进行访谈并录音。采用科莱齐的分析方法对转录后的访谈内容进行分析。数据于2013年在几个月的时间里收集。
产生了四个主题：它们被称为造口生活的4个“ S”：沉默、灵性、卫生习惯和生存。沉默与他人感受到的耻辱和评判有关。随着参与者意识到真主的仁慈，他们感觉更有能力参与宗教活动。参与者在净身仪式以及遵守严格的礼拜要求方面遇到困难。在为礼拜仪式做准备时，会在卫生习惯上投入更多时间和精力。生存和生活质量与家人、医疗保健提供者以及宗教团体给予的支持有关。
穆斯林社区需要为造口患者设立支持小组，需要提供易于获取的宗教习俗和造口护理指导，特别是在与宗教义务的净身准备相关方面。与造口护理以及对穆斯林患者的支持相关的文化宗教问题应纳入卫生专业人员的教育内容。
