[组织癌症生存护理：儿童癌症幸存者的过渡与长期护理]
[Organizing survivorship: transition and long-term care for childhood cancer survivors].
作者信息
Sleimann Madelaine, Langer Thorsten, Gebauer Judith
机构信息
Klinik für Kinder- und Jugendmedizin, Universitätsklinikum Schleswig-Holstein, Campus Lübeck, Ratzeburger Allee 160, 23538, Lübeck, Deutschland.
Klinik für Pädiatrie mit Schwerpunkt Onkologie und Hämatologie, Charité-Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Augustenburger Platz 1, 13353, Berlin, Deutschland.
出版信息
Inn Med (Heidelb). 2025 May 19. doi: 10.1007/s00108-025-01916-2.
BACKGROUND
Survivors of childhood or adolescent cancer have high long-term survival rates due to improved therapies but often suffer from complex late and long-term effects which should be diagnosed and treated early.
OBJECTIVE
Existing models of transition and long-term follow-up care for adult survivors of childhood and adolescent cancer in Germany are presented and perspectives for care and research in this field are outlined.
RESULTS
There is potential for improvement in the area of networking of the medical disciplines involved as well as in the involvement and education of patients.
CONCLUSIONS
Nationwide harmonization and standardization of long-term follow-up care and transition is important to ensure that all childhood cancer survivors in Germany have access to care according to guideline recommendations.
背景
由于治疗方法的改进，儿童或青少年癌症幸存者的长期生存率较高，但他们常常遭受复杂的晚期和长期影响，这些影响应尽早诊断和治疗。
目的
介绍德国针对儿童和青少年癌症成年幸存者的现有过渡和长期随访护理模式，并概述该领域护理和研究的前景。
结果
在相关医学学科的联网以及患者的参与和教育方面有改进的潜力。
结论
长期随访护理和过渡的全国性协调与标准化对于确保德国所有儿童癌症幸存者都能按照指南建议获得护理至关重要。
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