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[组织癌症生存护理:儿童癌症幸存者的过渡与长期护理]

[Organizing survivorship: transition and long-term care for childhood cancer survivors].

作者信息

Sleimann Madelaine, Langer Thorsten, Gebauer Judith

机构信息

Klinik für Kinder- und Jugendmedizin, Universitätsklinikum Schleswig-Holstein, Campus Lübeck, Ratzeburger Allee 160, 23538, Lübeck, Deutschland.

Klinik für Pädiatrie mit Schwerpunkt Onkologie und Hämatologie, Charité-Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Augustenburger Platz 1, 13353, Berlin, Deutschland.

出版信息

Inn Med (Heidelb). 2025 May 19. doi: 10.1007/s00108-025-01916-2.

DOI:10.1007/s00108-025-01916-2
PMID:40389713
Abstract

BACKGROUND

Survivors of childhood or adolescent cancer have high long-term survival rates due to improved therapies but often suffer from complex late and long-term effects which should be diagnosed and treated early.

OBJECTIVE

Existing models of transition and long-term follow-up care for adult survivors of childhood and adolescent cancer in Germany are presented and perspectives for care and research in this field are outlined.

RESULTS

There is potential for improvement in the area of networking of the medical disciplines involved as well as in the involvement and education of patients.

CONCLUSIONS

Nationwide harmonization and standardization of long-term follow-up care and transition is important to ensure that all childhood cancer survivors in Germany have access to care according to guideline recommendations.

摘要

背景

由于治疗方法的改进,儿童或青少年癌症幸存者的长期生存率较高,但他们常常遭受复杂的晚期和长期影响,这些影响应尽早诊断和治疗。

目的

介绍德国针对儿童和青少年癌症成年幸存者的现有过渡和长期随访护理模式,并概述该领域护理和研究的前景。

结果

在相关医学学科的联网以及患者的参与和教育方面有改进的潜力。

结论

长期随访护理和过渡的全国性协调与标准化对于确保德国所有儿童癌症幸存者都能按照指南建议获得护理至关重要。

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本文引用的文献

1
Effectiveness of structured, multidisciplinary long-term care for pediatric cancer survivors: protocol of the multicenter, randomized-controlled AELKI study.结构化、多学科的儿童癌症幸存者长期照护的效果:多中心、随机对照 AELKI 研究方案。
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Treatment of Medulloblastoma in the Adolescent and Young Adult Population: A Systematic Review.青少年和青年人群髓母细胞瘤的治疗:一项系统评价
J Adolesc Young Adult Oncol. 2025 Feb;14(1):18-32. doi: 10.1089/jayao.2024.0044. Epub 2024 Aug 23.
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Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study.
实施互操作式生存护照(SurPass)v2.0 在 6 个欧洲国家的障碍和促进因素:PanCareSurPass 在线调查研究。
J Cancer Surviv. 2024 Jun;18(3):928-940. doi: 10.1007/s11764-023-01335-y. Epub 2023 Feb 20.
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Kidney Function after Treatment for Childhood Cancer: A Report from the St. Jude Lifetime Cohort Study.儿童癌症治疗后的肾功能:圣犹大终身队列研究报告
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Oncol Res Treat. 2020;43(3):61-69. doi: 10.1159/000504200. Epub 2020 Jan 13.
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Psychological Symptoms, Social Outcomes, Socioeconomic Attainment, and Health Behaviors Among Survivors of Childhood Cancer: Current State of the Literature.儿童癌症幸存者的心理症状、社会结局、社会经济成就和健康行为:文献现状。
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Factors influencing risk-based care of the childhood cancer survivor in the 21st century.影响 21 世纪儿童癌症幸存者基于风险的护理的因素。
CA Cancer J Clin. 2018 Mar;68(2):133-152. doi: 10.3322/caac.21445. Epub 2018 Jan 29.
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The cumulative burden of surviving childhood cancer: an initial report from the St Jude Lifetime Cohort Study (SJLIFE).儿童癌症幸存者的累积负担:来自圣裘德终身队列研究(SJLIFE)的初步报告。
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