Burke Meghan M, Ramos-Torres Saury, Espinosa Gabriela Herrera, Hincapie Ana Lucia, Aleman-Tovar Janeth, Perez Rocio, Puente Consuelo
Vanderbilt University, Nashville, TN, USA.
The University of Texas at Austin, Austin, TX, USA.
Autism Res. 2025 Aug;18(8):1714-1724. doi: 10.1002/aur.70068. Epub 2025 Jun 21.
Families of transition-aged youth with autism often struggle to access services. Due to systemic barriers, Latino, Spanish-speaking families of autistic youth especially struggle to access services. One way to improve service access is through parent advocacy abilities (i.e., knowledge of adult services, advocacy abilities and comfort, empowerment). To improve parent advocacy abilities and, ultimately, service access, we conducted a randomized controlled trial to test the feasibility and efficacy of an advocacy program: ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services). Of the 30 participants who were retained for analyses, intervention (vs. waitlist-control) group participants demonstrated significant increases in knowledge about adult services, advocacy activities, advocacy skills and comfort, and empowerment. Further, intervention (vs. waitlist-control) group participants demonstrated significantly greater service access. Implications for research and practice are discussed. Trial Registration: clinicaltrials.gov: NCT06207149.
患有自闭症的过渡年龄青年的家庭往往难以获得服务。由于系统性障碍,尤其是讲西班牙语的拉丁裔自闭症青年家庭在获取服务方面面临更大困难。改善服务获取的一种方法是通过家长的宣传能力(即对成人服务的了解、宣传能力和舒适度、赋权)。为了提高家长的宣传能力并最终改善服务获取情况,我们进行了一项随机对照试验,以测试一项宣传计划的可行性和有效性:ASISTIR(Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición;支持我们患有自闭症的孩子获得过渡服务)。在保留用于分析的30名参与者中,干预组(与候补名单对照组相比)的参与者在对成人服务的了解、宣传活动、宣传技能和舒适度以及赋权方面有显著提高。此外,干预组(与候补名单对照组相比)的参与者获得的服务明显更多。本文讨论了对研究和实践的启示。试验注册:clinicaltrials.gov:NCT06207149。