白癜风对重大生活决策及感知到的污名化的影响：一项横断面研究。
Impact of Vitiligo on Major Life-changing Decisions and Perceived Stigmatization: A Cross-sectional Study.
作者信息
Castellano-Lopezosa Lucía, Ureña Paniego Clara, Haselgruber Sofía, Blasco-Morente Gonzalo, Arias-Santiago Salvador
机构信息
Faculty of Medicine, University of Granada, Granada, Spain.
Department of Dermatology, Hospital Universitario Virgen de las Nieves, Granada, Spain.
出版信息
Acta Derm Venereol. 2025 Aug 5;105:adv44198. doi: 10.2340/actadv.v105.44198.
Vitiligo is a chronic autoimmune disease that profoundly affects patients' quality of life. A cross--sectional, observational study was conducted with 51 patients using self-administered questionnaires, with the aim to evaluate the impact of vitiligo on major life-changing decisions (MLCDs) as well as on stigmatization using a modified version of the Patient Unique Stigmatization Holistic tool in dermatology (PUSH-D) scale. Results showed that the most affected MLCDs were clothing choices, social interactions, and lifestyle changes. Facial vitiligo was significantly associated with a greater impact on work-related decisions. Factors such as being single, not having children, being female, and longer disease duration were linked to higher impact on life decisions. The study emphasizes the importance of addressing both clinical severity and the psychological burden of vitiligo to improve patient care.
白癜风是一种严重影响患者生活质量的慢性自身免疫性疾病。对51名患者进行了一项横断面观察性研究，采用自行填写的问卷，目的是使用皮肤科患者独特耻辱感综合工具（PUSH-D）量表的修改版，评估白癜风对重大生活决策（MLCD）以及耻辱感的影响。结果显示，受影响最大的重大生活决策是服装选择、社交互动和生活方式改变。面部白癜风与对工作相关决策的更大影响显著相关。单身、没有孩子、女性以及病程较长等因素与对生活决策的较高影响有关。该研究强调了解决白癜风的临床严重程度和心理负担以改善患者护理的重要性。
Zotero 插件