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视力障碍者的慢性疼痛:一项国际调查研究方案

Chronic pain in individuals who have visual impairments: a protocol for an international survey study.

作者信息

Miró Jordi, Sampietro Ariadna, Solé Ester, Llorens-Vernet Pere, Mora Carlos

机构信息

Universitat Rovira I Virgili, Unit for the Study and Treatment of Pain - ALGOS, Catalonia, Spain.

Department of Psychology, Research Center for Behaviour Assessment (CRAMC), Catalonia, Spain.

出版信息

Front Pain Res (Lausanne). 2025 Aug 8;6:1631770. doi: 10.3389/fpain.2025.1631770. eCollection 2025.

Abstract

Individuals who have visual impairments (IVI) face unique challenges in coping with and adjusting to chronic pain. However, this population remains underrepresented in chronic pain research and often encounters barriers in accessing effective, tailored healthcare. The primary objective of this study is to generate baseline data on the prevalence, types, and impact of chronic pain in this population. The secondary objectives are to identify specific challenges in pain management and provide evidence to identify specific challenges in pain management and to provide evidence that can inform the development of targeted interventions aimed at promoting equitable healthcare and improving quality of life. An international cross-sectional observational study will be conducted using an online survey administered via LimeSurvey. The survey, developed specifically for this project, will be accessible in multiple languages to enhance participation and representativeness. It is designed to capture the unique aspects of chronic pain, ocular and non-ocular forms, in IVI, including barriers to care and management challenges. This protocol aims to establish a comprehensive understanding of chronic pain in IVI. The findings will help bridge current research gaps, guide tailored interventions, and inform policy initiatives, ultimately reducing healthcare disparities and enhancing quality of life for this underserved group.

摘要

有视力障碍的个体在应对和适应慢性疼痛方面面临独特挑战。然而,这一人群在慢性疼痛研究中的代表性仍然不足,并且在获得有效、个性化的医疗保健方面常常遇到障碍。本研究的主要目标是生成关于该人群慢性疼痛的患病率、类型和影响的基线数据。次要目标是确定疼痛管理中的具体挑战,并提供证据以确定疼痛管理中的具体挑战,以及提供可用于为旨在促进公平医疗保健和改善生活质量的针对性干预措施的制定提供信息的证据。将通过LimeSurvey进行一项国际横断面观察性研究,使用在线调查问卷。专门为该项目开发的调查问卷将提供多种语言版本,以提高参与度和代表性。它旨在捕捉有视力障碍个体慢性疼痛的独特方面,包括眼部和非眼部形式,以及护理障碍和管理挑战。本方案旨在全面了解有视力障碍个体的慢性疼痛。研究结果将有助于弥合当前的研究差距,指导针对性干预措施,并为政策倡议提供信息,最终减少医疗保健差距,提高这一服务不足群体的生活质量。

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