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智力和发育障碍者从青少年到成人的医疗保健过渡:当前障碍与后续步骤

Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps.

作者信息

Ramachandran Shwetha, Stensland Solveig, Corder Julie H, Cuomo Carrie, Dao Thao-Vi, Natowicz Marvin R

机构信息

Cleveland Clinic Lerner College of Medicine, Case Western Reserve University, Cleveland, OH, United States.

Children's Institute, Cleveland Clinic, Cleveland, OH, United States.

出版信息

Front Pediatr. 2025 Aug 15;13:1486325. doi: 10.3389/fped.2025.1486325. eCollection 2025.

DOI:10.3389/fped.2025.1486325
PMID:40894401
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12394008/
Abstract

The transition of health care from adolescence to adulthood is a challenging time, especially for persons with intellectual and developmental disability (IDD), where navigating health care transitions can be particularly difficult. Persons with IDD are an especially vulnerable population and they and their caregivers encounter barriers in obtaining high quality health care transition. These barriers result in the suboptimal utilization of health care transition services and consequent poorer health outcomes. Herein, we discuss barriers to obtaining high quality pediatric to adult transitional health care for persons with IDD. We then discuss next steps, some of them well recognized and others underappreciated, for addressing these barriers and thereby achieving an important public health need: the attainment of high quality pediatric to adult health care transition for persons with IDD.

摘要

从青少年期到成年期的医疗保健过渡是一个具有挑战性的时期,对于智力和发育障碍(IDD)患者而言尤其如此,他们在应对医疗保健过渡方面可能会特别困难。IDD患者是一个特别脆弱的群体,他们及其照顾者在获得高质量的医疗保健过渡方面会遇到障碍。这些障碍导致医疗保健过渡服务利用不足,进而导致健康结果较差。在此,我们讨论了IDD患者获得高质量儿科到成人过渡性医疗保健的障碍。然后,我们讨论了针对这些障碍的后续步骤,其中一些已得到广泛认可,另一些则未得到充分重视,以解决这些障碍,从而满足一项重要的公共卫生需求:为IDD患者实现高质量的儿科到成人医疗保健过渡。