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为被拘留青少年的照顾者并与他们共同设计“增强青少年支持与赋权”移动健康干预措施。

Co-Design of the RAISE Mobile Health Intervention for and with Caregivers of Detained Youth.

作者信息

Folk Johanna B, McBride Elizabeth, Nova Sloan, Hurtado Yaneth, Tolou-Shams Marina

机构信息

Department of Psychiatry and Behavioral Sciences, University of California, San Francisco, 1001 Potrero Avenue, San Francisco, CA, 94110, US.

出版信息

Res Child Adolesc Psychopathol. 2025 Sep 22. doi: 10.1007/s10802-025-01361-7.

Abstract

Caregivers of detained adolescents often face significant stress and barriers to accessing resources needed to support their adolescents during community re-entry. This mixed-methods study used a participatory co-design approach to develop and pilot test a mobile health intervention aimed at reducing parenting stress among caregivers of detained adolescents with behavioral health needs. Eleven caregivers participated across two phases: co-design of the intervention (n = 6) and an open trial (n = 5). Co-design sessions engaged caregivers as equal partners to create an intervention (RAISE) tailored to their needs, incorporating mindfulness-based stress reduction, resources for navigating the juvenile legal system, and tools for improving family communication. Quantitative findings indicated high levels of caregiver engagement with the co-design process, with increased confidence in contributing to mobile app development and strong perceptions of the intervention's relevance. Qualitative thematic analysis highlighted caregiver priorities for intervention, including stress-management strategies, culturally relevant content, and mechanisms for community connection. Caregivers valued being recognized as integral collaborators and emphasized the importance of addressing structural barriers, such as stigma and systemic racism, within the app. The final RAISE app integrates evidence-based practices with user-driven features, offering a culturally relevant and accessible tool to support caregivers. Despite limitations, including a small sample size and technical challenges during the open trial, the study demonstrates the feasibility of participatory methods to address the unique needs of caregivers of detained adolescents. Future research will evaluate the efficacy of RAISE in reducing stress and improving outcomes for families of detained youth.Clinicaltrials.gov registration NCT05032742.

摘要

被拘留青少年的照顾者在帮助青少年重新融入社区的过程中,往往面临巨大压力,且难以获取所需资源。这项混合方法研究采用了参与式协同设计方法,来开发并试点测试一项移动健康干预措施,旨在减轻有行为健康需求的被拘留青少年照顾者的育儿压力。11名照顾者参与了两个阶段的研究:干预措施的协同设计(n = 6)和开放试验(n = 5)。协同设计环节让照顾者作为平等伙伴参与进来,以创建一项符合他们需求的干预措施(RAISE),该措施纳入了基于正念的减压方法、青少年法律系统导航资源以及改善家庭沟通的工具。定量研究结果表明,照顾者对协同设计过程的参与度很高,对参与移动应用程序开发的信心增强,并且对干预措施的相关性有强烈认知。定性主题分析突出了照顾者对干预措施的优先考虑事项,包括压力管理策略、文化相关内容以及社区联系机制。照顾者重视被认可为不可或缺的合作者,并强调在应用程序中解决诸如耻辱感和系统性种族主义等结构性障碍的重要性。最终的RAISE应用程序将循证实践与用户驱动功能相结合,提供了一个具有文化相关性且易于使用的工具来支持照顾者。尽管存在局限性,包括样本量小和开放试验期间的技术挑战,但该研究证明了参与式方法在满足被拘留青少年照顾者独特需求方面的可行性。未来的研究将评估RAISE在减轻压力和改善被拘留青少年家庭结局方面的效果。Clinicaltrials.gov注册号NCT05032742。

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