Gould H, Toghill P J
Br Med J (Clin Res Ed). 1981 Jan 17;282(6259):210-2. doi: 10.1136/bmj.282.6259.210.
Problems of communication with patients with acute leukaemia and their families were explored by interviewing the next of kin of 26 patients, six of whom were still alive. In all but two cases the diagnosis had been disclosed to the relatives before the patient, but almost one-third of the relatives were not entirely satisfied with the way in which the diagnosis was presented. Medical prognostications at these initial interviews were, on the whole, regarded as being realistic by the relatives. Nine patients learnt of their diagnosis at an early stage, but relatives were undecided whether patients should be told of the diagnosis in explicit terms. Patients often established complete dependence on the hospital and its staff and had difficulties in relating to their own general practitioners while at home during their illness. Social chats were preferred by the relatives rather than regular progress reports from the doctors.
通过采访26名急性白血病患者的近亲，对与急性白血病患者及其家属的沟通问题进行了探讨，其中6名患者仍在世。除两例情况外，在向患者透露诊断结果之前，均已向亲属透露，但近三分之一的亲属对诊断结果的告知方式并不完全满意。总体而言，亲属认为这些初次面谈中的医学预后是现实的。9名患者在早期就得知了自己的诊断结果，但亲属们对于是否应该明确地告知患者诊断结果尚无定论。患者常常完全依赖医院及其工作人员，在患病居家期间难以与自己的全科医生取得联系。亲属们更喜欢社交性的交谈，而不是医生定期提供的病情进展报告。
