Schaap T
Department of Human Genetics, Hadassah-Hebrew University Medical Center, Jerusalem, Israel.
Clin Genet. 1995 Mar;47(3):155-7. doi: 10.1111/j.1399-0004.1995.tb03949.x.
Genetic counseling in a synthetic fragile-X family is used to illustrate some dilemmas which may arise from the genetic counselor's wish to respect the patient's confidence. What is the counselor's obligation towards family members who are unaware that they are carriers? Should the counselor try to avoid disclosing information concerning such family members to the patient, and if so-how? May the future father of an affected fetus be prevented from participating in the reproductive decisions concerning that fetus, out of respect for the mother's wishes?
一个人工合成的脆性X综合征家族中的遗传咨询被用于阐明一些可能因遗传咨询师希望尊重患者隐私而产生的困境。对于那些不知道自己是携带者的家庭成员,咨询师有什么义务?咨询师是否应该尽量避免向患者透露有关这些家庭成员的信息,如果是,该如何做?出于对母亲意愿的尊重,是否可以阻止患病胎儿的准父亲参与有关该胎儿的生育决策?