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使用“Intermate”对囊性纤维化患者进行居家治疗:第一年的经验

Home treatment of patients with cystic fibrosis using the 'Intermate': the first year's experience.

作者信息

Bramwell E C, Halpin D M, Duncan-Skingle F, Hodson M E, Geddes D M

机构信息

Department of Cystic Fibrosis, Royal Brompton Hospital, London.

出版信息

J Adv Nurs. 1995 Dec;22(6):1063-7. doi: 10.1111/j.1365-2648.1995.tb03106.x.

Abstract

Home treatment of patients with cystic fibrosis has many attractions and is becoming increasingly popular. The investigators have studied the use, results and costs of the first year of operation of a home-care intravenous antibiotic service using the 'Intermate' infusion device in a prospective study using questionnaires, spirometric and weight measurements. Ninety-three patients received 166 courses of intravenous antibiotics in full or in part at home during 1991. The average length of treatment was 12.5 days and on average 70% of the treatment was given at home. The mean percentage predicted FEV1 and FVC improved after treatment and the mean improvement was not significantly different to that produced by hospital treatment. Breathlessness, sputum volume, appetite, ability to sleep, mood, energy and overall well-being, as assessed by questionnaire, showed significant improvements after home treatment. The median time spent mixing and administering drugs was 10-19 hours and visiting the hospital was 7-12 hours. The median number of days of lost income to patients or their carers was 0 days. The majority of the patients were extremely satisfied with the treatment and supervision that they received. Using the home care service, 1442 inpatient days were saved. The investigators conclude that home care using 'Intermates' improves a patient's lung function and quality of life.

摘要

囊性纤维化患者的家庭治疗具有诸多吸引力,且越来越受欢迎。研究人员通过问卷调查、肺功能测定和体重测量,在前瞻性研究中对使用“Intermate”输液装置的家庭护理静脉抗生素服务运营第一年的使用情况、效果和成本进行了研究。1991年,93名患者在家中全部或部分接受了166个疗程的静脉抗生素治疗。平均治疗时长为12.5天,平均70%的治疗在家中进行。治疗后,预计FEV1和FVC的平均百分比有所改善,且平均改善程度与医院治疗产生的改善程度无显著差异。通过问卷调查评估,呼吸急促、痰液量、食欲、睡眠能力、情绪、精力和整体幸福感在家庭治疗后均有显著改善。混合和给药的中位时间为10 - 19小时,前往医院的时间为7 - 12小时。患者或其护理人员损失收入的中位天数为0天。大多数患者对所接受的治疗和监督极其满意。使用家庭护理服务节省了1442个住院日。研究人员得出结论,使用“Intermate”的家庭护理可改善患者的肺功能和生活质量。

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