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法律审查:知情同意——从家长式作风到自主决定权的转变?

Legal review: informed consent--a shift from paternalism to self-determination?

作者信息

Smith C K

机构信息

Hemlock Society, Eugene, OR.

出版信息

Top Health Rec Manage. 1990 Sep;11(1):71-5.

PMID:10106987
Abstract

This shift from a paternalistic standard for determining how much information should be disclosed to a person to a standard that values the self-determination of a person is consistent with the philosophical change in decision-making in a variety of areas of health care. Haber begins his article with a discussion of the psychiatry profession's proposed change in terminology from "patient" to "client." He argues that such a change would be more than semantic: It would serve the moral purpose of increasing such a person's autonomy. The right of patients to see their own medical records was formally recognized as part of the Patient's Bill of Rights in 1972 and has since been recognized by courts and incorporated into many state statutes. Likewise, the refusal of medical treatment has become a right more commonly recognized by the law throughout the 1970s and 1980s. For example, "living wills" are now a common vehicle for patients to express their views regarding the right to refuse treatment. Courts have recognized this right in cases of Jehovah's Witnesses refusing transfusions, the right to have life-sustaining procedures discontinued, and the restrictive involuntary commitment statutes that arose in the 1970s. Both the risks and benefits of medical treatments have increased with the forward march of technology. Patients have the right to choose to participate with their physicians in their own health care decision making; the trend toward the reasonable patient standard in medical malpractice suits that relied on negligent failure to obtain informed consent reflects a recognition of that right.

摘要

从家长式的决定向某人披露多少信息的标准,转变为重视个人自我决定权的标准,这与医疗保健各个领域决策中的哲学变化是一致的。哈伯在其文章开头讨论了精神病学专业提议将术语从“患者”改为“客户”的问题。他认为这种改变不仅仅是语义上的:它将服务于增加个人自主权的道德目的。患者查看自己医疗记录的权利在1972年被正式承认为《患者权利法案》的一部分,此后得到法院认可并纳入许多州的法规。同样,在20世纪70年代和80年代,拒绝接受医疗治疗已成为一项更普遍被法律认可的权利。例如,“生前预嘱”现在是患者表达其对拒绝治疗权利看法的常见方式。法院在耶和华见证人教派信徒拒绝输血、停止维持生命程序的权利以及20世纪70年代出现的限制性非自愿住院法规等案件中都认可了这项权利。随着技术的进步,医疗治疗的风险和益处都增加了。患者有权选择与医生共同参与自身的医疗保健决策;医疗事故诉讼中倾向于合理患者标准的趋势,即因疏忽未获得知情同意而引发的诉讼,反映了对该项权利的认可。

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