Peifer J, Hopper A, Sudduth B
Biomedical Interactive Technology Center, Georgia Institute of Technology, Atlanta 30332-0200, USA.
Stud Health Technol Inform. 1998;50:67-73.
Computer and telecommunications technologies have unleashed a wide range of powerful tools for gathering, storing, and distributing patient information. Computerized records enable healthcare providers to rapidly access patient data and to closely monitor patients from a distance. These significant advantages can be further extended by using the technology to more fully involve patients in their own healthcare management. A patient-centric approach to telemedicine means that the patient takes on additional responsibility and control, and the benefits from increased patient involvement will translate into improved compliance, reduced litigation, lower costs, and better outcomes. Furthermore, there are often important ethical questions that are best decided by the informed patient. Patients have a right to know what information is being gathered and who will be authorized to access that information. Current health information systems do not adequately address these issues, and telemedicine applications--particularly home based telemedicine--is forcing everyone to take a closer look at patients' roles in their own healthcare. In this presentation, a patient-centric home telemedicine database is described, the limitations are discussed, and future directions are proposed.
计算机和电信技术已经释放出了一系列用于收集、存储和分发患者信息的强大工具。计算机化记录使医疗服务提供者能够快速获取患者数据，并从远处密切监测患者。通过利用该技术让患者更全面地参与自身医疗管理，这些显著优势可以进一步扩大。以患者为中心的远程医疗方法意味着患者承担更多责任并拥有更多控制权，患者更多参与带来的益处将转化为更好的依从性、减少诉讼、降低成本以及更好的治疗效果。此外，通常存在一些重要的伦理问题，最好由知情的患者来决定。患者有权知道正在收集哪些信息以及谁将被授权访问这些信息。当前的健康信息系统并未充分解决这些问题，而远程医疗应用——尤其是基于家庭的远程医疗——正促使每个人更仔细地审视患者在自身医疗中的角色。在本报告中，将描述一个以患者为中心的家庭远程医疗数据库，讨论其局限性，并提出未来的发展方向。
