Hinton J
Palliat Med. 1999 Jan;13(1):19-35. doi: 10.1191/026921699672169546.
Awareness and acceptance of dying were assessed weekly by semistructured interviews in a randomized sample of 76 hospice cancer patients and caring relatives. During the final eight weeks of the study, patients' awareness showed only slight increase (about 42% fully certain) while relatives' certainty clearly progressed (from 53% to 81% certain). Depression was linked with greater awareness in relatives but not patients. Patients were more anxious if death seemed probable rather than certain or no more than possible. Acceptance usually increased, with 51% of patients and 69% of relatives becoming nearly/fully accepting. Many individuals diverged from the average progress of awareness and acceptance; 18% of patients and 24% of relatives showed fluctuating or falling acceptance. Patients' and relatives' levels of awareness were positively correlated (r = 0.46), as was acceptance (r = 0.47). Relatives accepted more if patients were over 70 years, weak, unable to concentrate or had a quality of life index (QLI) below five, but patients were more accepting if female and if the QLI was above five. Pain did not increase acceptance. Acceptance was described in terms of death's inevitability, faith and spiritual values, life's diminishing rewards, completing life, final benefits, humour, sharing, etc. Individuals often used more than one concept. Generalizing exact figures from this sample needs caution, but some patterns of progress, possible influential factors and ways of acceptance may apply widely.
通过对76名临终关怀癌症患者及其照料亲属的随机样本进行半结构化访谈,每周评估他们对死亡的认知和接受程度。在研究的最后八周,患者的认知仅略有提高(约42%完全确定),而亲属的确定程度明显提高(从53%提高到81%确定)。抑郁与亲属而非患者的更高认知有关。如果死亡似乎有可能而非确定或只是有可能,患者会更焦虑。接受程度通常会提高,51%的患者和69%的亲属几乎/完全接受。许多人的认知和接受程度偏离了平均进展;18%的患者和24%的亲属表现出接受程度波动或下降。患者和亲属的认知水平呈正相关(r = 0.46),接受程度也是如此(r = 0.47)。如果患者年龄超过70岁、身体虚弱、无法集中注意力或生活质量指数(QLI)低于5,亲属的接受程度更高,但如果患者是女性且QLI高于5,患者的接受程度更高。疼痛并没有增加接受程度。接受程度是根据死亡的必然性、信仰和精神价值、生活回报的减少、完成生命、最终益处、幽默、分享等方面来描述的。个人通常会使用不止一个概念。从这个样本中归纳出确切数字需要谨慎,但一些进展模式、可能的影响因素和接受方式可能具有广泛的适用性。