Carlsson M E, Strang P M, Nygren U
Department of Gynecologic Oncology, University Hospital, Uppsala, Sweden.
J Cancer Educ. 1999 Spring;14(1):41-6. doi: 10.1080/08858199909528572.
People's knowledge of cancer is generally inadequate to help them cope with a diagnosis of cancer. Educational support groups may allow cancer patients to receive information they want that is normally not covered in the individual clinical encounter. It was desired to identify the content of such information as reflected in the questions asked by cancer patients and their relatives in such support groups.
The 329 questions asked by 41 patients and 11 of their relatives in 40 group sessions were analyzed and categorized.
The categories found are described. Almost 100 questions could be allocated to the category "the illness," of which the most common was, "Is cancer hereditary?" The questions made it clear that the patients had a wish and a need to understand cancer.
An educational support group provides a complement to, and not a substitute for, the clinical provision of medical information.
人们对癌症的了解普遍不足，难以帮助他们应对癌症诊断。教育支持小组可能使癌症患者获得他们想要的信息，而这些信息在个体临床诊疗过程中通常不会涉及。希望确定此类信息的内容，这些内容反映在癌症患者及其亲属在这类支持小组中提出的问题里。
对41名患者及其11名亲属在40次小组会议上提出的329个问题进行了分析和分类。
描述了所发现的类别。近100个问题可归入“疾病”类别，其中最常见的是“癌症会遗传吗？”这些问题清楚地表明患者有了解癌症的愿望和需求。
教育支持小组是对临床提供医疗信息的补充，而非替代。
