Albrecht G L, Devlieger P J
University of Illinois at Chicago, School of Public Health, 60612, USA.
Soc Sci Med. 1999 Apr;48(8):977-88. doi: 10.1016/s0277-9536(98)00411-0.
This paper builds on the work of Sol Levine to examine a disability paradox: Why do many people with serious and persistent disabilities report that they experience a good or excellent quality of life when to most external observers these individuals seem to live an undesirable daily existence? The paper uses a qualitative approach to develop an explanation of this paradox using semi-structured interviews with 153 persons with disabilities. 54.3% of the respondents with moderate to serious disabilities reported having an excellent or good quality of life confirming the existence of the disability paradox. Analysis of the interviews reveals that for both those who report that they have a good and those who say they have a poor quality of life, quality of life is dependent upon finding a balance between body, mind and spirit in the self and on establishing and maintaining an harmonious set of relationships within the person's social context and external environment. A theoretical framework is developed to express these relationships. The findings are discussed for those with and without disabilities and directions are given for future research.
本文以索尔·莱文的研究为基础,探讨一种残疾悖论:为什么许多患有严重且持续性残疾的人报告称他们拥有良好或极佳的生活质量,而在大多数外部观察者看来,这些人的日常生活似乎并不理想?本文采用定性研究方法,通过对153名残疾人进行半结构化访谈,来解释这一悖论。54.3%的中度至重度残疾受访者报告称拥有极佳或良好的生活质量,这证实了残疾悖论的存在。对访谈的分析表明,对于那些报告生活质量良好的人和那些报告生活质量较差的人来说,生活质量取决于在自我内部实现身体、心理和精神的平衡,以及在个人的社会背景和外部环境中建立并维持一套和谐的人际关系。本文构建了一个理论框架来表达这些关系。研究结果针对残疾人和非残疾人进行了讨论,并为未来的研究指明了方向。