Raines D A
Virginia Commonwealth University, School of Nursing, Richmond 23298-0567, USA.
Neonatal Netw. 1999 Aug;18(5):35-9. doi: 10.1891/0730-0832.18.5.35.
To develop an understanding of the experiences of women who give birth to an infant with a genetic anomaly not identified during the prenatal period.
Exploratory design using selected qualitative methods.
Seven mothers of liveborn infants with a genetic anomaly characterized by physical attributes evident at birth.
Mother's expressions of suspended mothering.
Two themes emerged that characterize the experience of suspended mothering: diminished maternal role and false protection. PRACTICE RECOMMENDATIONS: Facilitating maternal involvement in decision making requires giving women unbiased information in a supportive manner.
了解那些生下产前未被诊断出患有基因异常婴儿的女性的经历。
采用选定的定性方法进行探索性设计。
七名活产婴儿的母亲，其婴儿患有基因异常，出生时具有明显的身体特征。
母亲暂停母爱的表现。
出现了两个主题来描述暂停母爱的经历：母亲角色的削弱和虚假保护。
促进母亲参与决策需要以支持的方式向女性提供客观公正的信息。
