Decruyenaere M, Evers-Kiebooms G, Denayer L, Welkenhuysen M, Claes E, Legius E, Demyttenaere K
Centre for Human Genetics, University of Leuven, Belgium.
Eur J Hum Genet. 2000 Feb;8(2):130-6. doi: 10.1038/sj.ejhg.5200438.
Since the identification of two breast-ovarian cancer susceptibility genes (BRCA1/2), predictive testing for hereditary breast/ovarian cancer (HBOC) has been available. Given the complexity and uncertainties of HBOC and the potential impact of predictive testing on psychological well-being, we offer the test applicants a combination of information-oriented and psychological counselling. In this paper, we describe the multidisciplinary approach for predictive testing for HBOC as a clinical service in Leuven, hereby focusing on psychological and decision counselling practice. Attention is paid to the theoretical framework used for pre-test psychological counselling in Leuven. We discuss three important interacting dimensions of psychological counselling: individual emotional support, decision counselling and support of the family communication process. Decision counselling consists of an evaluation of the cognitive and the emotional processing of the information given and strategies and resources for coping. This serves as a starting point to facilitate free informed decision making. Scenario development is used as a decision aid.
自从发现了两种乳腺癌-卵巢癌易感基因（BRCA1/2）以来，遗传性乳腺癌/卵巢癌（HBOC）的预测性检测就已经可以进行。鉴于HBOC的复杂性和不确定性以及预测性检测对心理健康的潜在影响，我们为检测申请人提供了信息导向和心理咨询相结合的服务。在本文中，我们描述了在鲁汶作为一项临床服务的HBOC预测性检测的多学科方法，在此重点关注心理和决策咨询实践。我们关注鲁汶用于检测前心理咨询的理论框架。我们讨论心理咨询的三个重要相互作用维度：个人情感支持、决策咨询和家庭沟通过程支持。决策咨询包括对所提供信息的认知和情感处理的评估以及应对策略和资源。这作为促进自由做出知情决策的起点。情景开发用作决策辅助工具。
