Skranes L P, Skranes J, Skranes J S
Det medisinske fakultet, Universitetet i Oslo.
Tidsskr Nor Laegeforen. 2000 Apr 30;120(11):1332-5.
Infants with very low birthweight (< 1,500 grams) are at increased risk of neurological disabilities and impairments later in childhood. We wanted to study whether the paediatric departments in Norway had organised routine neurological follow-up programmes for these patients, and in particular whether the child habilitation departments participated in the follow-up.
A questionnaire was returned from 19 of 23 pediatric departments. The questionnaire also included other neonatal risk groups. The results showed that one senior paediatrician was in charge of the follow-up at most departments. The neonatologists worked in collaboration with the child neurologists, and most often the child habilitation department was consulted in the neonatal period.
Only seven departments used a standardised follow-up programme. Main high risk groups were infants with birthweight < 1,500 grams and infants with birth asphyxia. There was a lack of consensus with regard to other inclusion criteria, time for follow-up and type of examinations. Only a few of the departments had performed follow-up studies concerning neurological sequelae and quality of life for this group of patients.
Registration of neurological disease in premature children should be mandatory for every department with neonatal intensive medicine.
极低出生体重儿（<1500克）在儿童期后期出现神经功能障碍和损伤的风险增加。我们想研究挪威的儿科部门是否为这些患者组织了常规的神经学随访计划，特别是儿童康复部门是否参与了随访。
23个儿科部门中有19个回复了问卷。问卷还包括其他新生儿风险组。结果显示，大多数部门由一名资深儿科医生负责随访。新生儿科医生与儿童神经科医生合作，并且在新生儿期大多会咨询儿童康复部门。
只有7个部门使用标准化随访计划。主要高危组是出生体重<1500克的婴儿和出生时窒息的婴儿。在其他纳入标准、随访时间和检查类型方面缺乏共识。只有少数部门对该组患者进行了神经后遗症和生活质量的随访研究。
每个设有新生儿重症医学的部门都应强制登记早产儿的神经疾病。
