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与遗传学相关的法律问题。

Legal issues associated with genetics.

作者信息

Carson W Y

机构信息

Nurse Practice Counsel, American Nurses Association, Washington, DC, USA.

出版信息

Nurs Clin North Am. 2000 Sep;35(3):719-29.

PMID:10957686
Abstract

With the evolution of genetic research, legal issues have emerged related to the health care delivery industry and the protection of patient information. The use of genetics or genetic enhancement expands the role of the nurse and also brings a new perspective to the nurse-patient relationship. Nurses now must discern their role in relation to patient privacy and confidentiality. In addition to reviewing the ethical and legal dilemmas of registered nurses in clinical practice, the nursing profession must review the level of responsibility appropriate when using genetic and or experimental treatments, especially when the nurse is not the primary care provider or the leader of the research team. Nurses will have to delve into privacy and confidentiality issues associated with genetic research. Although little case law exists on the relationship of nursing to genetic research and treatments, the implications of experimental research and policy associated with genetics must be analyzed to better understand their impact on the scope of nursing practice.

摘要

随着基因研究的发展,与医疗保健行业及患者信息保护相关的法律问题应运而生。遗传学或基因增强技术的应用拓展了护士的角色,也为护患关系带来了新视角。护士现在必须认清自己在患者隐私和保密方面的角色。除了审视注册护士在临床实践中面临的伦理和法律困境外,护理行业还必须审视在使用基因治疗和/或实验性治疗时应承担的适当责任水平,尤其是当护士并非初级护理提供者或研究团队负责人时。护士将不得不深入研究与基因研究相关的隐私和保密问题。尽管关于护理与基因研究及治疗关系的判例法很少,但必须分析与遗传学相关的实验性研究和政策的影响,以便更好地理解它们对护理实践范围的影响。

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