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荷兰癫痫患者群体中癫痫发作的社会心理影响:一项华盛顿社会心理癫痫发作量表的比较研究

Psychosocial impact of epileptic seizures in a Dutch epilepsy population: a comparative Washington Psychosocial Seizure Inventory study.

作者信息

Swinkels W A, Shackleton D P, Trenité D G

机构信息

Stichting Epilepsie Instellingen Nederland, Heemstede.

出版信息

Epilepsia. 2000 Oct;41(10):1335-41. doi: 10.1111/j.1528-1157.2000.tb04614.x.

Abstract

PURPOSE

The psychosocial functioning of epilepsy patients from the Netherlands was investigated and compared with results from other countries. The impact of epilepsy was also studied in two different groups of Dutch epilepsy patients, inpatients and outpatients.

METHODS

The Washington Psychosocial Seizure Inventory (WPSI) was used to study the psychosocial problems of 134 Dutch outpatients and 181 Dutch inpatients. WPSI profiles were compared with those from the former German Democratic Republic (West Germany), Finland, Canada, the United States, Chile, and Japan.

RESULTS

For the Dutch epilepsy patients, most of the psychosocial problems were experienced by inpatients; they had serious problems in emotional, interpersonal, and vocational adjustment, adjustment to seizures, and overall psychosocial functioning. Seizure-free outpatients, however, experienced significant problems only in the emotional adjustment area. Comparing the outcomes of various countries, Dutch outpatients and patients from West Germany and Finland experienced the least psychosocial difficulties, whereas epilepsy patients from Chile, Japan, and Canada have serious problems in most areas of psychosocial functioning.

CONCLUSIONS

Patients with epilepsy experience psychosocial problems, although the amount of psychosocial difficulties depends on the seizure frequency and the culture that patients live in.

摘要

目的

对荷兰癫痫患者的心理社会功能进行调查,并与其他国家的结果进行比较。还对两组不同的荷兰癫痫患者(住院患者和门诊患者)进行了癫痫影响的研究。

方法

采用华盛顿心理社会癫痫量表(WPSI)研究134名荷兰门诊患者和181名荷兰住院患者的心理社会问题。将WPSI概况与前德意志民主共和国(西德)、芬兰、加拿大、美国、智利和日本的概况进行比较。

结果

对于荷兰癫痫患者,住院患者经历的心理社会问题最多;他们在情绪、人际和职业适应、对癫痫发作的适应以及整体心理社会功能方面存在严重问题。然而,无癫痫发作的门诊患者仅在情绪调整方面存在显著问题。比较各国的结果,荷兰门诊患者以及来自西德和芬兰的患者经历的心理社会困难最少,而来自智利、日本和加拿大的癫痫患者在心理社会功能的大多数方面都存在严重问题。

结论

癫痫患者会经历心理社会问题,尽管心理社会困难的程度取决于癫痫发作频率和患者所处的文化环境。

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