Riaño I, Malaga S, Callis L, Loris C, Martin-Govantes J, Navarro M, Vallo A
Section of Pediatric Nephrology, Hospital Central de Asturias, Oviedo, Spain.
Pediatr Nephrol. 2000 Nov;15(1-2):157-62. doi: 10.1007/s004679900169.
There are few data describing the current practices of treatment selection for children with end-stage renal disease (ESRD). In an effort to establish a consensus among Spanish pediatric nephrologists for inclusion and exclusion criteria for renal replacement therapy in children with ESRD, in 1995 we surveyed members of the Spanish Pediatric Nephrology Association. Although only 43% of members responded, pediatric nephrologists and bioethicists studied the results and compiled a list of ten guidelines for treatment of children with ESRD. The proposed guidelines are meant to be a starting point for further discussion. An emphasis on flexibility, individual case assessment, and consideration of the best interests of the patient must remain central to any treatment plan. Decision making should ideally be shared by parents, professionals, the child, when appropriate, and ethics committees, as necessary.
目前关于终末期肾病（ESRD）患儿治疗选择的现有做法的数据很少。为了在西班牙儿科肾病学家之间就ESRD患儿肾脏替代治疗的纳入和排除标准达成共识，1995年我们对西班牙儿科肾病协会的成员进行了调查。尽管只有43%的成员做出了回应，但儿科肾病学家和生物伦理学家研究了结果，并编制了一份针对ESRD患儿治疗的十条指南清单。拟议的指南旨在作为进一步讨论的起点。任何治疗计划都必须始终将重点放在灵活性、个案评估以及考虑患者的最大利益上。理想情况下，决策应由父母、专业人员、（适当时）患儿以及必要时的伦理委员会共同做出。
