Russman BS
Pediatric Neurology, Shriners Hospitals for Children, 3101 SW Sam Jackson Park Road, Portland, OR 97201, USA.
Curr Treat Options Neurol. 2000 Mar;2(2):97-108. doi: 10.1007/s11940-000-0011-4.
The neurorehabilitation program for cerebral palsy changes over time. During the first 2 years of life, an infant stimulation program with an emphasis on more than just improving motor deficits is emphasized. The importance of involvement of a knowledgeable therapist cannot be overemphasized. Realistic expectations must be articulated firmly. Rather then cautiously attempting to correct a dysfunction that cannot be corrected, the therapist should help the patient develop compensation techniques; the severity of the disability frequently militates against the development of "normal" motor control. Educating the parents about cerebral palsy, showing how positioning can be an effective way of helping the child be mobile, and encouraging parent-child interaction are aspects of an infant stimulation program. The therapist should serve as a coach to the parents, who implement much of the actual treatment on a daily basis at home. From 2 to 5 years of age, rapid growth occurs, and muscle tone will either develop or worsen--the latter leading not only to the development of contracture but also to a decrease in mobility. In developing a program to control this muscle tone, the most important question to be answered is, Can I improve the patient's function and decrease the patient's disability by altering muscle tone? It is not uncommon for the real problem preventing the patient from performing certain functions to be lack of motor control or lack of sensation and not the abnormal muscle tone. Between 5 and 10 years of age, the child begins to approach adult height. At this time, definitive orthopedic intervention can be considered; as already noted, contracture development occurs as a result of abnormal muscle tone in combination with growth. Finally, as the child approaches the teen years, issues of sitting and hygiene are important considerations, especially in the nonambulatory patient. The problem of pain secondary to spasticity or dystonia must be addressed.
脑瘫的神经康复计划会随着时间而变化。在生命的头两年,强调开展婴儿刺激计划,该计划不仅仅着重于改善运动缺陷。知识渊博的治疗师参与其中的重要性无论如何强调都不为过。必须明确阐述现实的期望。治疗师不应谨慎地试图纠正无法纠正的功能障碍,而应帮助患者开发代偿技巧;残疾的严重程度常常不利于“正常”运动控制的发展。向家长讲解脑瘫知识、展示正确的姿势如何能有效地帮助孩子活动以及鼓励亲子互动,都是婴儿刺激计划的组成部分。治疗师应充当家长的指导者,因为家长每天在家中实施大部分实际治疗。2至5岁期间,孩子生长迅速,肌张力会有所发展或恶化——后者不仅会导致挛缩,还会降低活动能力。在制定控制这种肌张力的计划时,要回答的最重要问题是:通过改变肌张力,我能否改善患者的功能并减轻其残疾程度?阻碍患者执行某些功能的真正问题往往是缺乏运动控制或感觉缺失,而非异常肌张力,这种情况并不少见。5至10岁时,孩子开始接近成人身高。此时,可以考虑进行确定性的骨科干预;如前所述,挛缩的发展是异常肌张力与生长共同作用的结果。最后,当孩子接近青少年时期,坐姿和卫生问题成为重要考量因素,对于非行走患者尤为如此。必须解决由痉挛或肌张力障碍引起的疼痛问题。