Bain N S, Campbell N C
Department of General Practice and Primary Care, Foresterhill Health Centre, Westburn Road, Aberdeen AB25 2AY, UK.
Fam Pract. 2000 Dec;17(6):475-9. doi: 10.1093/fampra/17.6.475.
The aim of the present study was to explore the perspectives of patients receiving treatment for colorectal cancer and compare priorities and attitudes in rural and urban areas.
A qualitative study was carried out involving four focus groups in the Aberdeen and Northern Centre for Haematology, Oncology and Radiotherapy. The sample comprised 22 patients at various stages of treatment for colorectal cancer and 10 of their relatives from different locations of Northeast Scotland and Shetland. The main themes generated by participants were identified, and similarities and differences between urban and rural patients were noted within these themes.
Components of care that were important to rural and urban patients were speed of referral to specialists for treatment and issues of communication including test results and delivery of bad news. Tensions were perceived at the interface of primary and secondary care and these were blamed for delays in referral and communication breakdowns. For some, the referral process comprised a series of barriers to be overcome, and there were additional hurdles for remote patients referred initially to local (non-specialist) hospitals. Rural patients appeared to be less demanding than their urban counterparts when evaluating their care, and this was extended to the acceptance of some clear transport problems.
For patients, the most important components of cancer care were similar, whether rural or urban residents. The main differences for rural patients were lower expectations of care and more hurdles before reaching specialist care. These differences might explain the trend to more advanced disease at diagnosis in rural patients if they lead to significant delays. GPs have major influences on this and all the patients' priorities.
本研究旨在探讨接受结直肠癌治疗的患者的观点,并比较农村和城市地区的优先事项及态度。
在阿伯丁及北部血液学、肿瘤学和放射治疗中心开展了一项定性研究,涉及四个焦点小组。样本包括22名处于结直肠癌不同治疗阶段的患者及其10名亲属,他们来自苏格兰东北部和设得兰群岛的不同地点。确定了参与者提出的主要主题,并在这些主题中记录了城市和农村患者之间的异同。
对农村和城市患者而言,护理的重要组成部分包括转诊至专科医生进行治疗的速度以及沟通问题,包括检查结果和坏消息的传达。在初级和二级护理的衔接处存在紧张关系,这些被认为是转诊延迟和沟通中断的原因。对一些人来说,转诊过程包含一系列需要克服的障碍,对于最初转诊至当地(非专科)医院的偏远地区患者而言,还有额外的障碍。在评估护理时,农村患者似乎比城市患者要求更低,这也延伸到对一些明显交通问题的接受上。
对于患者来说,无论农村还是城市居民,癌症护理最重要的组成部分是相似的。农村患者的主要差异在于对护理的期望较低,以及在获得专科护理之前面临更多障碍。如果这些差异导致显著延迟,可能解释农村患者在诊断时疾病进展更严重的趋势。全科医生对此以及所有患者的优先事项有重大影响。