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脊柱裂诊所——组织层面

Spina bifida clinic--organisational aspects.

作者信息

Karmarkar S J

机构信息

Department of Paediatric Surgery, Bai Jerbai Wadia Hospital for Children, Parel, Mumbai.

出版信息

Indian J Pediatr. 1997 Nov-Dec;64(6 Suppl):83-5.

Abstract

Spina bifida is a complicated problem which affects many systems and demands multidisciplinary attention. The psychosocial aspects of a condition like spina bifida also need to be carefully handled. The ultimate goal is prevention, requiring co-ordinated efforts to establish antenatal diagnosis and screening tests for this anomaly. In our country, the task of solving the difficulties faced by these children at home and in school also falls on our shoulders. All the above responsibilities can only be undertaken if a group of doctors, nurses, social workers, administrators and philanthropists are dedicated to the care and well being of these children. A special clinic helps to create and maintain such a group in order to provide for all, the varied medicosocial needs of a spina bifida patient under one roof.

摘要

脊柱裂是一个复杂的问题,它会影响多个系统,需要多学科的关注。像脊柱裂这样的病症的社会心理方面也需要谨慎处理。最终目标是预防,这需要各方协同努力来建立针对这种异常情况的产前诊断和筛查测试。在我国,解决这些孩子在家中和学校所面临困难的任务也落在了我们肩上。只有当一群医生、护士、社会工作者、管理人员和慈善家致力于这些孩子的照料和福祉时,上述所有责任才能得以承担。一个特殊诊所有助于组建并维持这样一个团队,以便在同一屋檐下满足脊柱裂患者所有多样的医疗社会需求。

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